Refusal

[Ellie]

It might take baby steps Denise - the seed has been planted, who knows what may happen over time x

[Tess]

Of course this helps Broostine, great to hear all experiences and thoughts x

[denise]

stephen has had a chest x-ray and ecg and his peg should go ahead in 2 weeks. its a bit nerve wracking especially as we thought he was going to have it done on wednesday but this was time for a chat about the procedure. have to say that didn't really help much infact i nearly changed my mind but stephen seemed ok about it. its like when i think we should go do something he comes up with the opposite - i need to change my way of thinking

[Ellie]

denise It's totally natural to be worried about what's expected of you in potentially having to look after Stephen's feeding tube, and all the feeding etc - it's all unknown to you and must be daunting.

Take a look through this site, hopefully it'll help and of course you can ask us anything: https://mytube.mymnd.org.uk/

Love Ellie.

[matthew55]

What I don't know about feeding tubes isn't worth knowing. It's the only thing I'm good at these days! 😊x

[denise]

It's the whole responsibility thing. It's daunting. It's scary. I try to come up with conversations on what we should think about and all I get is: I suppose so, if you want, whatever you think. Then when I agreed to him having the peg he revolted and now he's changed his mind and going ahead with it. I've told him at this rate I might run away. 😉