Going to have a RIG fitted tomorrow. Wish me luck ! 🥴 love Lizzie x
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Well Denise, it hasn’t happened!! It seems the hospital are struggling with beds so I came low down the list. They hadn’t given me the Covid advice/ test and the ward sister hadn’t read my notes so didn’t know I have MND. I was so upset as it was supposed to be a planned admission. I now have to wait for it to be rescheduled 😩 love Lizzie x
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Oh Lizzie, I'm gutted for you 😩
Hopefully you won't have to wait long for the next slot (don't let them forget about you!!)
Big hug to you.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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oh no. oh lizzie how horrible. though saying that we thought that stephen was having his on wednesday only to realise it was just a discussion about the procedure. so we are going back in 2 weeks time. so its like going through the whole worry thing again. the stress levels are so terrible.
denise
xxxwhen i can think of something profound i will update this.
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