Announcement

Collapse
No announcement yet.

RIG tube

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #31
    Andy I am so pleased you've had it done. I hope it feels better soon.xxx

    Comment


      #32
      Oh no Denise... What a nightmare. I hope you have another appointment soon and you are able to both relax this evening after your horrible day.

      Andy, I hope you feel more comfortable soon. Its reassuring to know that it's over very quickly.

      Lizzie, I hope you're home soon and you're getting the care you need for your RIG.

      Thinking of you all,
      Love Debbie x

      Comment


        #33
        Oh Denise, that's so disappointing for you both. - the 'empty stomach' rule should have been made crystal clear to you.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #34
          Welcome to the Club, Andy! Great to hear from you.

          And remember, if you don't get on with the mask you were given for the Nippy, there are alternatives - don't suffer in silence...

          Love Ellie.

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #35
            Hi Ellie,

            I don’t come on the forum too often these days, I get so annoyed by those who post because they ‘think’ they have MND. They can have mine if they want it.

            Anyway, thanks for the advice about the masks. I’d been on a CPAP for the last four years so I’m quite used to the masks now.
            The ventilation team at the Royal Stoke know me quite well now and respond to any problems with utmost urgency.

            Hope you are coping ok.

            Love Andy
            Sporadic MND/ALS - Limb onset - Diagnosed May 2016

            Today is the tomorrow I feared yesterday

            Comment


              #36
              I sent a message on here to Andy yesterday wishing him well and the pain goes. I noticed later that my message was highlighted pale green and was marked unapproved! Is this a bit weird?

              Comment


                #37
                Yes, Denise. Weird indeed. Perhaps Forum Admin will let us know why.

                Doug

                Comment


                  #38
                  I've gone through the paperwork for Stephens procedure and nothing about no food before hand. Let him dare mention toast or coffee next time 😐 I have recovered from yesterday but what a wasted week.
                  last time we saw our doctor he said we can collect prescription from local pharmacy. Went to local pharmacy and they said no apparently something going on between hospital and pharmacy and no one signing anything. Ok back to getting it from the hospital. Get home and pharmacy phones to say I can pick up Stephens medication because it's just arrived. So I get to do that today. This is all I've done all week! Friday tomorrow and im doing housework. I hate house work but i hate it less than running around like something possessed. 👹

                  Comment


                    #39
                    Originally posted by denise View Post
                    I sent a message on here to Andy yesterday wishing him well and the pain goes. I noticed later that my message was highlighted pale green and was marked unapproved! Is this a bit weird?
                    Happens to me regularly, especially if I go back and edit a post. Usually I delete a post which is in moderation and repost.

                    Your post will pop up as soon as it's looked at, Denise - I suspect there are key words which trigger a moderation.

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #40
                      No word from Lizzie.
                      sorry everyone that I keep complaining

                      Comment


                        #41
                        Yes I’m here, at home, and much happier than on that ward. My community support has kicked in so I feel more settled now. Pain is settling and I’m learning to flush the tube and take my meds in a more comfortable way. Denise , I do hope Stephen gets his procedure soon. Good luck.
                        lizzie 😊

                        Comment


                          #42
                          I'm so glad you are home and happy. Hopefully Stephen get another go soon or I will do it myself 😄

                          Comment

                          Working...
                          X