Control the excitement or it will be a waste of money π
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Watch this space
when i can think of something profound i will update this.Comment
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Do you suppose he's alright?
when i can think of something profound i will update this.Comment
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Either really went well or it was a disaster. Or someone's nicked his laptop and he can't communicate. π€when i can think of something profound i will update this.Comment
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What's that they say? Be careful what you wish for? I can't even pull a pro βΉοΈBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Oh how disappointing for you mate, so sorry.
You know what though - mega respect for being honest, a lesser man would have lied. Kudos to you.
Big hugs and big smoochies to you.
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yes you have my huge respect for your honesty too, Matthew, and for giving it a go xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Perhaps it's not for you. Bit clinical. Makes you more well I don't know I shouldn't think it's to everyone's taste. Another thing off the bucket list. Good for trying.
big hug and kisses from me ππππwhen i can think of something profound i will update this.Comment
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I wrote too soon and apparently I have stamina even if I couldn't finish. It's like riding a bike I guess, no pun intended. ππππππBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Next time maybe, when you're more relaxed?βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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