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    #1

    Swallowing ... particularly wine

    Hi,

    My poor partner can't swallow enough to drink wine or beer . Does anybody have any advice ( anything considered at this point) that we could use. We have moved onto thickeners, he is still not enjoying that . So am about to move into pureed cocktails. This does not seem like a good time to stop drinking We moved onto a recommended company called SloDrink? but they have not fulfilled our order and owe us £8.

    Any ideas would be great. Thanks
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    • 1 like
    #2
    Welcome to the Forum, Jomo.

    Does wine catch your partner's breath, causes him to cough, or is it that his swallow is too poor, even if he sips through a straw?

    Sometimes very cold drinks go down easier, so use lots of crushed ice in your cocktail smoothies. Citrus juices can catch one's breath, so you might need to do a lot of experimenting!! IDK if using something like coconut milk or ice cream would make it easier to swallow?

    Sounds like you'll have fun try but, and I don't want to spoil the party, often our balance is poor with MND, so he should stay upright and not fall.

    Of course it begs the question - does he have a feeding tube?

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
    ​
    • 2 likes

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      #3
      If he trys all those suggestions through his feeding tube im sure he will have trouble staying upright. Interesting information though i need to keep a note of these ideas for future reference.
      when i can think of something profound i will update this.

      Comment

        #4
        The problem with PEGing alcohol is the larger quantities of pure alcohol and it works a lot quicker too. 😊x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Hi Jomo . I really empathise with your partner’s problem. I too enjoy a glass of wine and don’t think this is the time to stop. I tried thickener but 😖 it wasn’t great. Still trying to drink it very slowly but know it won’t be long until I need to give up or get creative 🤔
          • 2 likes

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            #6
            Hi Jomo,

            It may be worth investing in a smoothie maker as there are lots of recipes online. I too enjoy a drink and crushed ice with lime and g&t go down easier than water.

            Barry
            I’m going to do this even if it kills me!
            • 1 like

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              #7
              stephen loves his glass of wine with his dinner. he certainly wont want to give that up.
              when i can think of something profound i will update this.

              Comment

                #8
                Sorry to intrude on a non-MND Connect thread but I thought it might be worth mentioning that alcoholic jellies can be easier to manage than drinking alcohol. Our Eating and Drinking guide has a recipe for vodka jelly on page 65 https://www.mndassociation.org/app/u...-2018-V3-1.pdf I'm not sure how well other types of alcohol work as a jelly but it's worth considering as an option.

                We always suggest speaking to your speech and language therapist before trying, to ensure jelly is a safe consistency but I thought it might be helpful to mention.

                Best Wishes

                Rachel
                MND Connect Adviser
                MND Connect
                Contact us on 0808 802 6262 or at [email protected]
                • 2 likes

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                  #9
                  All around to Rachel's for a Party!! (of course that doesn't work in Covid times 😌)
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                  ​

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                    #10
                    Vodka jelly wow.
                    when i can think of something profound i will update this.

                    Comment

                      #11
                      Thanks so much for all your help! Going to go with the suggestions and see what we can get down. Bob likes port and lemonade , can't use a straw but will try the other things. Will report back when sober

                      Comment

                        #12
                        I have a beaker, it's just like going back in time. 😉x
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                          #13
                          Hi everyone

                          I love red wine but find now that I am not eating the wine catches in my throat and although it pains me to spoil good wine I find if I add some lemonade it helps. Gin and tonic must be really cold and then it is much easier to swallow. I haven't tried jelly but I may.

                          keep well and safe x Sarah xx

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