Well today I was formally dismissed from work as incapable but worse I discovered that my hands are without feeling. I discover cuts and abrasions that I never felt. The upside being I don't bleed like I used to. 😊x
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Dear Matthew,I don’t understand the total loss of feeling in your hands and how it came on so quickly. I hope you have help and friends and that it is only temporary and just a bad day.. you are such a gift just reading your words and your attitude. When you wrote you haven’t had a gift for Christmas in years I wanted to paint you a painting. I guess that sort of thing is not allowed but even though I only know you and some of my other new friends in writing and perseption, I treasure you all. I am watching my Fritz lose his strength and I feel so helpless and sad, yet he goes on to figure out the next steps. His legs seem to have stopped wanting to carry his weight just this week. Such dramatic changes so overnight make you feel like you were robbed. Sending hugs
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Originally posted by matthew55 View PostI discovered that my hands are without feeling.
Work, meh, their loss 🤗🤗
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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