Probably the worst thing so far for me is that I cannot smile anymore. My face just won't do it and if I'm trying to smile I just bare my teeth. This has to be the cruelest desease. 😞
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Oh Matthew, bless you. Guess that's one thing about wearing a mask no one will know.
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when i can think of something profound i will update this. -
Matthew, it is a cruel disease, so relentless, but you do make others reflect, question, and also many times smile. XComment
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Yes, MND knows no bounds. Important not to let it bring you down.Comment
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We know you're smiling. That's the important thing. You make us smile. 😁when i can think of something profound i will update this.Comment
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You do bring such good thoughts, inspiration and so much for everyone to reflect on . And as Denise said we know you are smiling (or not ) by your humor, compassion and All of us that count on youComment
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I can actually feel the love 😊xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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I only come on here to see what you have to say. It's like thought for today. Do you remember having a calender on your desk and each day there was some kind of daily comment. It's a bit like that but your a darn sight better. Now you'll be sitting there trying to figure out what to say tomorrow 🤔when i can think of something profound i will update this.Comment
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being fairly new to this, and not having been on much, I have appreciated your honest contributions, Matthew, thanks
Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Try this for size...
I can still double-over though ...Comment
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Even when you think there's nothing left you can still fight on 🤗when i can think of something profound i will update this.Comment
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It's wired I feel like I'm smiling even if my face doesn't look happy. 😞
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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It's early for me 😊xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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As long as you feel your smiling then that's all that matters.
when i can think of something profound i will update this.Comment
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I keep thinking about graham daft video 🤣when i can think of something profound i will update this.Comment
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