Can anyone recommend a good protective/ tidy belt to hold a feeding tube tidy and discreet ?? ๐ค Thankyou
lizzie x
lizzie x
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I've used one and advise you not to wash in a machine. It's scary how dirty it gets. 51F9fCab8oL._AC_SX425_.jpgBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx -
Thanks Matthew. Where did you get it?Comment
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I bought it from Amazon. And yes Ellie I don't mind paying the extra. ๐xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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How you getting on Lizzie?when i can think of something profound i will update this.Comment
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Doing ok thanks Denise. Getting used to the tube. Has your husband got a date for his yet?. Lizzie xComment
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matthew55 Things are often way cheaper on Amazon than on the specialist, rip-off 'disabled' websites, even with no VAT!โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Well we are living in mad times ๐xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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The only thing about the pouches is to make sure the site isn't covered by the material, keep the pouch away from the site. The air should be able to circulate around the site to keep it dry, if covered, nasty bugs can grow on the humid skin.
Love Ellie.โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thanks for the info Matthew and Ellie. Iโll have a look on Amazon. ๐ xxComment
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Lizzie, once my tract was fully formed, I swapped the long tube for a button, much neater.
MicKey button.jpgโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Stephen should have his next week. If nothing goes wrong ๐when i can think of something profound i will update this.Comment
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Ellie, that button thing looks soooo much better. The hanging tube thing just gets in the way. How long does it take before that can be done?
love, Lizzie xComment
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Lizzie, it takes about 2-3 months for the stoma tract to fully form, then the long tube can be switched.
Your tube is probably balloon retained because you had the RIG procedure, so it's a simple replacement. Balloon retained buttons do have more upkeep - mine is changed every 6ish months, takes my husband 3mins - and balloon water is changed regularly, takes 5secs! But I've had buttons for years and love them.
Love Ellie.โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I have found a great one. It sits above the site and keeps the end snug in a bag. So comfortable that I forget I am wearing it. ๐x Screenshot_20201002-100436.pngBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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