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    #31
    What are you on Ellie?

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      #32
      Now I take 10ml, 2x day. I started off on 5ml per day but needed more. It hasn't had any effect on my mucus, thankfully.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #33
        How much pineapple juice would I take if it gets too thick?

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          #34
          Usually folk take a glass per day. It's the enzyme in pineapple which acts on the secretions, hence it doesn't need to be be taken orally.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #35
            If you can’t take it orally or via a peg then try my method, it’s called osmosis lol.

            I’m going to do this even if it kills me!

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              #36
              Originally posted by Barry52 View Post
              If you can’t take it orally or via a peg then try my method, it’s called osmosis lol.
              Does that involve having a bath in it?
              Each day is made easier with a bit of humour.

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                #37
                Pineapple juice really works thank you so so very much. I syringed 180 ml yesterday and this morning I have no sticky mucus. Bliss 😁x

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                  #38
                  Yep it does and we don't even have to taste it 👍
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #39
                    They have given me another med to combat thick saliva / mucus instead of pineapple juice im only on 2.5ml too and can cope with it. They will ot increase it above 2.5ml based on dealing with mind patients

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                      #40
                      Originally posted by jd58 View Post
                      They have given me another med to combat thick saliva / mucus
                      Carbocistine?

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #41
                        Yes that's it why?

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                          #42
                          I was just wondering, no negative reason!! Hope it works well for you x
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                            #43
                            Thanks 😁

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                              #44
                              Anybody have Botox injections?

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                                #45
                                I've been offered x-rays 😆

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