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    Venting

    People used to compliment my voice, I have always loved cooking and eating and apparently I was a great kisser. I wish I had cancer.
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Be careful what you wish for.....
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    ​

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      #3
      I'm as serious as cancer when I say I'd swap in a heartbeat. 😊x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        But there are some horrible cancers too.
        I liked being a size 12.
        I don't like cooking but now I have to cook or we starve.
        I guess there's a lot of things we'd like but we get to make do. 😁
        when i can think of something profound i will update this.

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