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    Life with MND

    I spend all day trying to get my mouth dry yet I spend all night wishing it wet. 🤔

    #2
    Now that you mention it, I too note the irony, 10 years later. I'm gutted I didn't realise that before. 0-1.
    Copyright Graham

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      #3
      I was going to suggest sucking sweets at night but you'd have to be careful in case of choking. 🤤

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        #4
        Biotene Dry Mouth gel, a lifesaver.

        Even available on Amazon, I checked 😍
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          I use that but no matter how much I use I still end up dry. I'm a martyr to my tounge 😄 x

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            #6
            Does your mouth open when you're asleep?


            Homer asleep.jpg

            Maybe a chin strap would solve the issue (admittedly a strang look!)
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Since my nose was broken when I was little my nose gets stuffed up when I'm in bed. Sadly I cannot use that. x

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                #8
                I was going to say I bet snoring dries your mouth out! Lovely picture. Now we know what Matthew looks like in bed 😁

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                  #9
                  I haven't snored since loosing all my weight, oh and I have ordered a chin strap. Try anything me. 😉x

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                    #10
                    Originally posted by matthew55 View Post
                    oh and I have ordered a chin strap. Try anything me. 😉x
                    Oh you're hilarious Matthew - never change 😍

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #11
                      It's arrived and later tonight I will be wearing it so wish me luck. 😄x

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                        #12
                        Hope you're more of a Sleeping Beauty and not a Homer Simpson 🤞🤞

                        Best of luck 😘
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                          #13
                          Cant wait to hear how it all went. ☺

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                            #14
                            Managed half a night. It felt very odd but I will persevere 😄x

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                              #15
                              And how was the Sahara mouth when it was on?

                              Originally posted by matthew55 View Post
                              It felt very odd
                              Says the man with a hole in his belly 🤣🤣🤣
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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