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Life with MND

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    #16
    To be honest my lips and tounge were dry even with my jaw clamped and because my jaw has moved my teeth no longer match up. Just one more thing init. 😊xx

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      #17
      Yeah, same here - my lower jaw is either too far back or too far forward (most attractive 😏) and often the tip of my tongue is bitten cos it can't get out of the way 🙄
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #18
        Any news mate? Those gnomes behaving themselves? Any old workmates been around lately?

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          Everybody seems to be terrified of Covoid so no visits. The nomes have a big party every Saturday night. Oh and my artwork is happening soon. xx

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            #20
            Ooh, that's exciting - any idea what artwork will appear? A tag, abstract or a surprise?
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #21
              It's a meadow at sunrise, a firm called Graffiti Kings is doing it. Not cheap but invaluable for my moral 😄x

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                #22
                Sounds interesting.

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                  #23
                  I will post a picture of the finished work 😄x

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                    #24
                    Get you. I seem to recall you getting the gnomes to do some artwork. 🤔

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                      #25
                      Well I did ask but they were too busy partying 😉x

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