Madness has it right. So begins another weary day. πx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Iβm going to do this even if it kills me! -
Queen: Who wants to live forever πBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Not me, but I wouldn't mind another 20 years. In fact, I'd probably settle for another 10 at the moment, obviously without this illness. πOriginally posted by matthew55 View PostEach day is made easier with a bit of humour.Comment
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Why is it when I'm trying to think of a song I can't think of anything.
when I'm trying to think about what I've been watching on Amazon prime again I can't think of anything.
my brain must be on holiday.
I introduced my son and girlfriend to the ying tong song and it's driving me nuts. Someone is responsible for that! π€£πwhen i can think of something profound i will update this.Comment
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Sorry Denise, thereβs always βIβm walking backwards to Christmasβ for change of songAs long as thereβs golf and beer Iβm happyComment
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Shaun Nooooo π± You said the C word and it's only mid-October!!! πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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And I did it my way πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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But Ellie, the shops are full of December seasonal products , managed to avoid saying Christmas
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let it snow, let it snow let it snowβAs long as thereβs golf and beer Iβm happyComment
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Cancelled this year
Iβm going to do this even if it kills me!Comment
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Well the thing is Shaun I caught myself singing walking backwards for Christmas in the shower. There's no hope for me π
when i can think of something profound i will update this.Comment
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I like the lyrics of this song. Love to hear again and again.Comment
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This gallery has 1 photos.Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Fabulous, Heather - thanks!!βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Santa will be late if has to self isolate LComment
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