Announcement

Collapse
No announcement yet.

Life is a song

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Life is a song

    Madness has it right. So begins another weary day. ๐Ÿ˜‰x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

    #2
    They also recorded one better day Matthew.

    https://youtu.be/7Xwh1J6VQnI
    Iโ€™m going to do this even if it kills me!

    Comment


      #3
      Queen: Who wants to live forever ๐Ÿ˜„
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

      Comment


        #4
        Originally posted by matthew55 View Post
        Queen: Who wants to live forever ๐Ÿ˜„
        Not me, but I wouldn't mind another 20 years. In fact, I'd probably settle for another 10 at the moment, obviously without this illness. ๐Ÿ˜
        Each day is made easier with a bit of humour.

        Comment


          #5
          Why is it when I'm trying to think of a song I can't think of anything.
          when I'm trying to think about what I've been watching on Amazon prime again I can't think of anything.
          my brain must be on holiday.
          I introduced my son and girlfriend to the ying tong song and it's driving me nuts. Someone is responsible for that! ๐Ÿคฃ๐Ÿ˜‚

          Comment


            #6
            Sorry Denise, thereโ€™s always โ€˜Iโ€™m walking backwards to Christmasโ€™ for change of song
            As long as thereโ€™s golf and beer Iโ€™m happy

            Comment


              #7
              Shaun Nooooo ๐Ÿ˜ฑ You said the C word and it's only mid-October!!! ๐Ÿ˜†
              โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              โ€‹

              Comment


                #8
                And I did it my way ๐Ÿ˜„x
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

                Comment


                  #9
                  But Ellie, the shops are full of December seasonal products , managed to avoid saying Christmas
                  โ€˜
                  let it snow, let it snow let it snowโ€™
                  As long as thereโ€™s golf and beer Iโ€™m happy

                  Comment


                    #10
                    Cancelled this year
                    Iโ€™m going to do this even if it kills me!

                    Comment


                      #11
                      Well the thing is Shaun I caught myself singing walking backwards for Christmas in the shower. There's no hope for me ๐Ÿ˜…

                      Comment


                        #12
                        I like the lyrics of this song. Love to hear again and again.

                        Comment


                          #13
                          You do not have permission to view this gallery.
                          This gallery has 1 photos.
                          Diagnosed July 2020, ALS bulbar onset.

                          Comment


                            #14
                            Fabulous, Heather - thanks!!
                            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            โ€‹

                            Comment


                              #15
                              Santa will be late if has to self isolate L

                              Comment

                              Working...
                              X