Hi just sharing my experience.To enable me to live in my home I decided to explore through floor lifts so I can ride in lift in a wheelchair to bed.At present I use a stairlift but planning ahead.So I got 3 quotes and got taken in by the look of the lift as the larger footprint lifts were quite ugly and clinical looking.So I looked at the nicer looking one and was assured by the rep it can take a standard wheelchair which it could.However the hospice OT reminded me that if and when I get worse I may need a bigger wheelchair and it simply would not fit in this companies lift(Stilz)I hadn’t realised this and paid a hefty deposit.I can only hope it will be refunded to me.Its my mistake so await their reply.Just sharing this in case anybody else finds themselves in this situation!!Seek advise from the physio or occupational therapist BEFORE paying a deposit!Will let you know if I get deposit refunded or not.No financial help available to me as savings over £23.250..Got to pay for bathroom to be converted to a wetroom too!
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Well good news the company(Stiltz)agreed to refund my £2000 and will refund it ASAP.I got quotes from 3 companies and the price was from 14000 to 15000.So glad the occupational therapist advised me to go for the bigger more versatile lift from Wessex lifts.Its not attractive but should do the job if I need a bigger wheelchair.
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So glad you got your deposit back Mary.
Once you see how useful the big Wessex lift is, hopefully its aesthetics will fade away!
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Denise, No planning permission needed for through floor lifts. I can still use the stairlift but planning ahead for the next stage. Its amazing what you learn in terms of what can help when independence is no longer an option. A bio bidet is next on my shopping list. A cheaper option than buying a toilet unit which has washing and drying facilities integrated to wash and dry your down below bits after using the toilet.! That led on to making sure I get the right shower chair to go over the bio bidet unit(the occupational therapist is looking to see if this is available on NHS).If not people can apply to MND association to see if they can offer financial help.At this rate my savings will be gone. Only diagnosed in June this year too.I have to say the occupational therapist and physiotherapist are part of the palliative care team and offer me amazing support when needed.Very thankful.
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Hi Janette, hope you get sorted.Its a minefield trying good get the right equipment.I have found that the OT and palliative care team give me good advice.wonder why your door can’t be widened?I am having a bathroom door moved to make level access for me.Its not a council property so paid to get my alterations done.The dilemma is what’s a priority and how soon will things be needed.Weekly I can feel my body changing but trying to keep cheerful as there are so many blessings in each day.Today got my 4 year old grandson staying overnight.Great how he just accepts Grandma’s legs and arms don’t work very well.He suggested I put plasters on them!Bless him.So glass of wine, chocs and TV for me .Hubby on call for grandson should he wake.X
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Mary you are so positive about everything. You just do it. I'm sort of dithering. I try talking to my husband about his needs but he seems to be putting his head in the sand. An argument broke out today because he seems to forget that when he can no longer manage I am left to do it all.
I shall get there somehow. It's nice to read everyone's plans and hopefully be able to do something similar.
Denise xxxwhen i can think of something profound i will update this.
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Hi Mary, good to hear you have deposit back and getting good advice. I am going to have to have adaptations to the bathroom too, and had never heard of a bio bidet, have just googled it and it sounds good. A friend of mine got an "all singing and dancing " toilet as she calls it, which cost her a lot of money, and I was thinking I would have to get something like that. And yes, good to count our blessings xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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Originally posted by Mary C View PostHi Janette, hope you get sorted.Its a minefield trying good get the right equipment.I have found that the OT and palliative care team give me good advice.wonder why your door can’t be widened?I am having a bathroom door moved to make level access for me.Its not a council property so paid to get my alterations done.The dilemma is what’s a priority and how soon will things be needed.Weekly I can feel my body changing but trying to keep cheerful as there are so many blessings in each day.Today got my 4 year old grandson staying overnight.Great how he just accepts Grandma’s legs and arms don’t work very well.He suggested I put plasters on them!Bless him.So glass of wine, chocs and TV for me .Hubby on call for grandson should he wake.XJanette x
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Hi Heather
yes check out bio bidets as they are a much cheaper option that the full toilet that does the wash and dry. You just have to check if you need to be transported in a shower chair over the bio bidet that the shower chair is compatible..Easy to make expensive mistakes isn't it.I am not very good with IT so don't know how to respond to your post directly Heather..Best wishes X
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