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    Excessive saliva

    Hi- this is all new to me at the moment-But is excess saliva a common symptom?
    was only diagnosed last week & was put on Riluzole-so not sure if it’s a side effect of these or not
    is there anything I can take to stop this?
    thank you for any advice.

    #2
    Hi Mark,

    Excess saliva is a common symptom of MND. There are several treatments available but you are best speaking to your GP as some have adverse effects.

    Barry
    I’m going to do this even if it kills me!

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      #3
      Mark, changes in saliva are not listed as a side effect of Riluzole - are you taking other meds which may have that side effect?

      In MND, it's not so much an increase in saliva production which causes the excess saliva, but our inadequate/slow swallow.

      As Barry said, there are various meds to decrease saliva production and you definitely do not have to put up with it!

      Love Ellie.

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Not forgetting lots of big tissues and plenty of bins. 😊

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          #5
          Hi Mark. Even though the consultant prescribed me some patches to reduce saliva (Hyoscine), I've not used them so far. I occasionally get thick, sticky saliva which can be a real nuisance and as others know, sometimes leads to choking fits, which are scary. So, I thought the last thing I want is to make it less runny. This is not based on any professional advice, so I might be barking up the wrong tree. Just a thought.
          Each day is made easier with a bit of humour.

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            #6
            Also, I don't think the Riluzole has made it worse. It started before I was taking it.
            Each day is made easier with a bit of humour.

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              #7
              Glycopyrronium Bromide works Brilliant for me although when I first saw it I could only think about the first World War 😉

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                #8
                matthew55 Oh, you changed from Atropine??

                I don't get the WWI reference - am I too young or too thick 😂😂
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  You don't want to know Ellie
                  Each day is made easier with a bit of humour.

                  Comment


                    #10
                    Nah GaryM I just want to see how brave Matthew is...
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #11
                      He's living with MND, Ellie, that puts him near the top of the bravery list in my book.
                      Each day is made easier with a bit of humour.

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                        #12
                        It was used to calm the raging beast. 😉 I have changed and for the better although one bottle won't last long 😊x

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                          #13
                          Cheers Gary 👍

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                            #14
                            OK Matthew, I had to Google that.

                            Soldiers used Bromide, which is different thankfully. I was worried for a sec thinking my beast must be off the scale, given I take so much Glycopyrronium Bromide 😳😂

                            Glad it works on your saliva x
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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