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  • Ellie
    replied
    OK Matthew, I had to Google that.

    Soldiers used Bromide, which is different thankfully. I was worried for a sec thinking my beast must be off the scale, given I take so much Glycopyrronium Bromide πŸ˜³πŸ˜‚

    Glad it works on your saliva x

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  • matthew55
    replied
    Cheers Gary πŸ‘

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  • matthew55
    replied
    It was used to calm the raging beast. πŸ˜‰ I have changed and for the better although one bottle won't last long 😊x

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  • GaryM
    replied
    He's living with MND, Ellie, that puts him near the top of the bravery list in my book.

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  • Ellie
    replied
    Nah GaryM I just want to see how brave Matthew is...

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  • GaryM
    replied
    You don't want to know Ellie

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  • Ellie
    replied
    matthew55 Oh, you changed from Atropine??

    I don't get the WWI reference - am I too young or too thick πŸ˜‚πŸ˜‚

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  • matthew55
    replied
    Glycopyrronium Bromide works Brilliant for me although when I first saw it I could only think about the first World War πŸ˜‰

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  • GaryM
    replied
    Also, I don't think the Riluzole has made it worse. It started before I was taking it.

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  • GaryM
    replied
    Hi Mark. Even though the consultant prescribed me some patches to reduce saliva (Hyoscine), I've not used them so far. I occasionally get thick, sticky saliva which can be a real nuisance and as others know, sometimes leads to choking fits, which are scary. So, I thought the last thing I want is to make it less runny. This is not based on any professional advice, so I might be barking up the wrong tree. Just a thought.

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  • matthew55
    replied
    Not forgetting lots of big tissues and plenty of bins. 😊

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  • Ellie
    replied
    Mark, changes in saliva are not listed as a side effect of Riluzole - are you taking other meds which may have that side effect?

    In MND, it's not so much an increase in saliva production which causes the excess saliva, but our inadequate/slow swallow.

    As Barry said, there are various meds to decrease saliva production and you definitely do not have to put up with it!

    Love Ellie.

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  • Barry52
    replied
    Hi Mark,

    Excess saliva is a common symptom of MND. There are several treatments available but you are best speaking to your GP as some have adverse effects.

    Barry

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  • Lythgoe81
    started a topic Excessive saliva

    Excessive saliva

    Hi- this is all new to me at the moment-But is excess saliva a common symptom?
    was only diagnosed last week & was put on Riluzole-so not sure if it’s a side effect of these or not
    is there anything I can take to stop this?
    thank you for any advice.
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