MND On Covid vulnerable list

[Shaun]

Hi
don’t know if anyone else has noticed, or if I’m just late too the game,
but I was just reading Covid rules on the app and MND is now recognised as clinically vulnerable. I know it’s not a competition but we are listed in front of our MS friends, I’m sure it wasn’t there before
is there a glimmer of hope the government is taking notice of us.
s

[matthew55]

Damn even less chance of me getting it 😉

[Doug Carpenter]

Thanks Shaun. That is indeed good news.

Originally, we had to self refer to the vulnerable list. The MNDA ran a campaign to get us recognised, but I thought nothing came of it.

A small step, but....

Well spotted!

Doug

[denise]

Well let's hope the government notices and not covid. It might be on the look out for vunerable groups.
Matthew I'm sure if you wish harder it will find you but we will be very upset! 😘

[nunhead_man]

Hi Shaun

Yes I noticed that too - I'm not sure it's going to make much difference as I'm being very careful in that have only been in one shop since March but then I have the troops here to help me out.

[GaryM]

I don't think of myself as reckless, but my wife and I have been out quite a lot since June. We've been to garden centres, shops and restaurants. I was on the vulnerable list in March due to having COPD before being diagnosed with MND. I know it's taking a risk each time and I could well end up in intensive care, but I felt that if I've only got another year or so left, I want some enjoyable memories. I'm more concerned about my wife catching it as she's my carer. I'm going in for a PEG in just over a week, so self-isolating at the moment.

[Mary C]

Hi Gary, I have also been going out since diagnosis in June but try to stick with distancing, mask wearing and handwashing. Like you if I only have a short time to live then I want to see my friends and family and make memories . Its a personal decision for everyone to decide themselves.Of course we follow local restrictions.Hope PEG procedure goes well.