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MND On Covid vulnerable list

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    MND On Covid vulnerable list

    don’t know if anyone else has noticed, or if I’m just late too the game,
    but I was just reading Covid rules on the app and MND is now recognised as clinically vulnerable. I know it’s not a competition but we are listed in front of our MS friends, I’m sure it wasn’t there before
    is there a glimmer of hope the government is taking notice of us.
    As long as there’s golf and beer I’m happy

    Damn even less chance of me getting it 😉
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx


      Thanks Shaun. That is indeed good news.

      Originally, we had to self refer to the vulnerable list. The MNDA ran a campaign to get us recognised, but I thought nothing came of it.

      A small step, but....

      Well spotted!


      Diagnosed April 2017


        Well let's hope the government notices and not covid. It might be on the look out for vunerable groups.
        Matthew I'm sure if you wish harder it will find you but we will be very upset! 😘
        when i can think of something profound i will update this.


          Hi Shaun

          Yes I noticed that too - I'm not sure it's going to make much difference as I'm being very careful in that have only been in one shop since March but then I have the troops here to help me out.



          ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

          "Things turn out the best for people who make the best of the way things turn out"


            I don't think of myself as reckless, but my wife and I have been out quite a lot since June. We've been to garden centres, shops and restaurants. I was on the vulnerable list in March due to having COPD before being diagnosed with MND. I know it's taking a risk each time and I could well end up in intensive care, but I felt that if I've only got another year or so left, I want some enjoyable memories. I'm more concerned about my wife catching it as she's my carer. I'm going in for a PEG in just over a week, so self-isolating at the moment.
            Each day is made easier with a bit of humour.


              Hi Gary, I have also been going out since diagnosis in June but try to stick with distancing, mask wearing and handwashing. Like you if I only have a short time to live then I want to see my friends and family and make memories . Its a personal decision for everyone to decide themselves.Of course we follow local restrictions.Hope PEG procedure goes well.