I'm just wondering if anyone gets this strange symptom. It feels like my throat and tongue suddenly move and create a burst of air that forces my cheeks and lips out. A bit like a burp but it doesn't come from my stomach. It usually happens several times over a period of about 10-15 minutes, maybe once or twice a day. My nasal passages seem to be permanently dry and restricted, which feels like it triggers the symptom when breathing through the nose. Not a major problem, I know, but I just thought I'd ask.
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Spasms are common, Gary, and can involve most muscles in the body from time to time. (I presume you've ruled out reflux)
Is your breathing resctricted by the spasm? I know you said there is a force of air giving you chipmunk cheeks but can you breathe 'normally' during a spasm?
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thanks for the reply, Ellie. I don't think it's reflux. I wouldn't say I could breathe normally because each "spasm" lasts less than a second. It's a bit like a swallow in reverse, so maybe it's just the swallowing muscles beginning to lose control. It seems to be initiated when breathing through the nose feels too restrictive. I just thought I'd put the question out there in case someone recognised it.Each day is made easier with a bit of humour.
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I asked because it could be a very mild Laryngospasm - you'd know if you had a full blown laryngospasm because it prevents breathing for a few seconds (but feels more like 10mins!!)
To me, it doesn't sound oesophogeal - at least my weak swallow never produced such spasms/muscle movements - but more breathing related as the initial trigger or as a consequence of restriction.
As others will say, it's best to try and relax and let it pass (usually easier said than done, mind you!)
If you don't have a decent strong sniff, maybe have a breathing assessment - I'm not suggesting you've a problem, you know your body best.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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