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Update on my plan to get a through floor lift.

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    Update on my plan to get a through floor lift.

    Hi All. Well you learn as you go along about the financial cost of MND.I am trying to plan ahead and so got 3 quotes for through floor lifts.Quotes were £13-15000.A friend suggested looking a refurbished one that comes with an installation plan.Well this seems more like it and the same lift but reconditioned is half the price of the new ones..best quote £6,500 with installation.No I don’t qualify for a grant as have savings that mean I have to self fund this,Same with the wet room ..I need to pay in full for that too.Not moaning just putting it out there to maybe consider a second hand lift as long as it’s installed and has a guarantee etc.
    At present still managing the stairlift but legs getting worse over the last few weeks.
    It was either adaptions or move house and we didn’t want the upheaval.

    #2
    Good thinking Mary.

    The MNDA give non means-tested grants - perhaps it's worth applying for a contribution towards the lift, that's why people raise money !!

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Mary, I have found that the MNDA have been very helpful. Over the years, I am nearly 5 years in, I have had some funding towards a stair lift, home adaptions, wheelchair and fancy loo. Yes MNDA is a very expensive disease and if you have any savings then you won’t get council support. Do call the MNDA they are wonderful and here to help us.

      Richard

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        #4
        Hi Mary C

        As Ellie and Richard have already mentioned, you may find our grants page useful which may help with funding towards the floor lift. You can find more information here - https://www.mndassociation.org/suppo...ople-with-mnd/

        Feel free to speak to our MND Connect helpline too as they will be able to give guidance on this too. More details and how to contact them can be found here - https://www.mndassociation.org/suppo...s/mnd-connect/

        Hope that helps,

        Forum Admin.
        Our working hours are Monday to Friday 8:30am until 5pm

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          #5
          Thanks for posting that info Admin_MND It's good to see it from the horse's mouth, so to speak!
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Thankyou for the responses.Yes I am aware that MND association give non means tested grants and the hospice OT is going to see if they might fund a bio bidet and possibly the shower chair that needs to go over it if the NHS don't supply that particular shower chair free, I do have a shower chair but the bio bidet requires a certain shower chair as the other type I have wont go over the toilet with the raised height of the bio bidet which is like a toilet seat with the abiity to wash and dry after using the toilet for when I need help in the future with such personal care tasks. So I don't want to ask MND association for help with funding my lift as that seems too many things to ask for. Also I am thrilled to have ordered my second hand through floor lift supplied and fitted for £6,300 which is less than half the price of a new one. Its a matter od doing research and it never entered my head until a friend suggested it that there would be refurbished pre loved lifts at half the price.Just wanted to share this info with others on the forum in case it helps anyone.

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              #7
              That sounds a good find, Mary. Where did you find it? Does anywhere stock/sell secondhand equipment that we might need? I wondered about this when I saw a private advert locally for some no longer needed mobility equipment that I thought I might need at some point, but haven't got there yet. I've just bought some kitchen gadgets, and wondered how long I will be able to use them, and was told by adaptation person that a stair lift might be useful for only a limited time. If we can need different things at different times and sometimes for only short periods, some organisations lend equipment, eg MNDA?
              Diagnosed July 2020, ALS bulbar onset.

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                #8
                Originally posted by Heather R View Post

                ......... and was told by adaptation person that a stair lift might be useful for only a limited time....
                Heather R. My Occupational Therapist said the same and gave me details of a local firm that would install a stairlift and then charge a rental per month (about £30-40 I think). Then when no longer needed would come and remove it. I've not pursued this yet as I can still walk, but it might be worth checking wherever you live. I don't think the big name firms are interested in this, but I've not looked into it.
                Each day is made easier with a bit of humour.

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                  #9
                  Hi Heather, I got a free stairlift as somebody in my family knew a person who no longer needed it.We then had it fitted and serviced.Everyones financial situation is different so grants may be available.I got advise from the hospice OT.I found a couple of companies by trawling the internet for through floor lifts..not needed yet but sense it may be in the near future.One company that supplies lifts is Freedom Access lifts ([email protected])which does Wessex lifts and other models supply and fit refurbished with guarantee and service plan( I am nor recommending just saying I got a quote from them)I found a one mans band chap that has the Terry lift I wanted as a larger model.The OT advised not to get the smallest as wheelchairs may change as My needs change.Half the price of a new lift.I just check with OT what can be provided and have to buy stuff that isn’t.As people have mentioned MND association may give a non means tested grant towards equipment not available on NHS..Best wishes Mary

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                    #10
                    Thanks, Mary, just trying to build up a picture of what's available or not, for future! x
                    Diagnosed July 2020, ALS bulbar onset.

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                      #11
                      Hi Heather. it’s good to research options to make life a little easier as our needs change.I love it if I can offer any support or advise as a fairly recent member here.It can be bewildering as we enter the realm of needing equipment to help with daily living.Also I learnt from the through ceiling lift research that best looking smaller lifts might prove to be not suitable at a later date.The only thing I don’t waste my time doing is reading MND facts and figures etc as found it depressing.Prefer to enjoy each day as much as possible and not waste it worrying about tomorrow.Best wishes Mary


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