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Diy

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    Diy

    I'm considering going into a funeral services and organized and paying for my own funeral. Has anyone else done this? 😊
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    My parents have their funerals all paid for and sorted, except for the dates, obvs!!

    I don't think it's an unusual thing to do when you get to a certain age or if you're at a certain life-stage, nor is it macabre.

    I haven't paid out any money - don't have any - hoping the husband will do that πŸ˜†
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    ​

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      #3
      Hi Matthew. Yes, I've recently organised and paid for a simple cremation( no fancy service) . I felt I needed to arrange it as I am leaving brain and spinal tissue for MND research at Sheffield University, and needed to know the funeral director would transport my body to and from there prior to cremation. Sounds morbid, but I'm glad it's arranged and I don't have to consider it any further. x 😏

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      • I was all up for it until I saw this sharp blunt practice πŸ€”

        In this clip, a dead man pretends to be alive in order to avoid "the cart".(new link 4/2019) Download the entire movie in HD from ThePirateBay: https://thepi...

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          #5
          Oh Graham what a horrible video! I've not got round to exploring leaving brain and spinal cord for research, how do you go about this?
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            #6
            Ni πŸ˜†
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Hi Heather. I arranged to leave tissue through dept of Neuroscience at Sheffield Uni ( SITraN ) where they are doing research into MND and other Neurological conditions. I know there are other similar centres across the country so it may depend on where you live. x 😊

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                #8
                Matthew said he was going but didn't say if he had. Perhaps they'll give you a taster πŸ˜„πŸ˜ŠπŸ˜πŸ˜‰
                when i can think of something profound i will update this.

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                  #9
                  I would but for the martial law πŸ˜‰x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Thanks Lizzie x
                    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                      #11
                      Hiya, my husband has arranged his own funeral and done a pre-payment plan with our local funeral director. At least I know what he wants/doesn't want and to be honest my mum arranged a pre-payment plan and died unexpectedly early 2019. From a bereaved perspective, it took a lot of heartache and arranging out of the equation as everything but flowers had been sorted.

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