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    Communication symbol

    I assumed that MNDA would announce on the forum what they launched today and put on Facebook.

    Since I appear in the video please don’t take this sharing as egotistical but I believe in increasing awareness of the problems people like me have when your voice fails. We hope that many businesses and organisations will adopt the practice and that in time the symbol will become as widely recognised as the wheelchair for disabled.

    https://www.mndassociation.org/mnd-a...t0okqp0vkfk14u

    Barry
    Last edited by Barry52; 12 November 2020, 22:45.
    I’m going to do this even if it kills me!

    #2
    Well done, Barry!

    Doug

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      #3
      Can I get an autograph please Barry? 👍

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        #4
        Well done. You now have a fan club 😙

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          #5
          You're great, Barry, well done and thanks!

          Really hope that the scheme is successful and that people with communication difficulties notice a genuine improvement in their retail/social experience.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            My daughters are both primary school teachers and I was discussing communication aids with them recently. One daughter has a young boy in her class who has speech issues. Although he has a speech app he feels awkward using it in front of the class. I guess some children are like adults when it comes to patience. I made a short video addressing him personally using my SpeakUnique voice. My daughter said his face lit up when she played it to him and that gives me a warm fuzzy feeling.

            Barry
            I’m going to do this even if it kills me!

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              #7
              Originally posted by Barry52 View Post
              ... and that gives me a warm fuzzy feeling.
              And so it should, Barry - it was a very kind and thoughtful act.

              Love Ellie.

              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                That's great, Barry, sounds like a great idea. I am just getting to the stage that I dread having to sort things out verbally, and this dread makes my voice even worse. I have stored my voice with speak unique, and guess I need to get an iPad to use it, as my desktop is not that portable of course! It's interesting for me to hear another speak unique voice, I find that the voice sometimes doesn't leave enough time between sentences, and of course sounds fairly monotonous, but then again so much better than mine as it is!
                Diagnosed July 2020, ALS bulbar onset.

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                  #9
                  Hi Heather,

                  You can use the app on your phone either android or iOS. You can change the speed of the speech under settings and I always slow mine down. You rightly point out that speech is affected by stress and now I refuse to use the telephone unless there is a text option.

                  Barry
                  I’m going to do this even if it kills me!

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                    #10
                    Well done and thank you Barry. X

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                      #11
                      Barry what is the text option on a phone? Must find out about that x
                      Diagnosed July 2020, ALS bulbar onset.

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                        #12
                        Originally posted by Heather R View Post
                        Barry what is the text option on a phone? Must find out about that x
                        Heather R you might find this interesting, although I've not used it.

                        https://www.relayuk.bt.com/

                        Each day is made easier with a bit of humour.

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                          #13
                          Thanks for explaining Gary.
                          I’m going to do this even if it kills me!

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                            #14
                            Many thanks Gary x
                            Diagnosed July 2020, ALS bulbar onset.

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                              #15
                              How do you know which organisations have a text/relay provision? Is there a list of such organisations, or do you have to find out by chance? Similarly how do you find out which organisations have a chat facility online except by trying them? eg if you wanted an insurance company with chat. When you say telephone with text, Barry, do you mean this relay service? Thanks x
                              Diagnosed July 2020, ALS bulbar onset.

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