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    #16
    Heather R Maybe the short video in this link will answer some of your questions? https://www.relayuk.bt.com/about-relay-uk.html

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      Originally posted by Heather R View Post
      How do you know which organisations have a text/relay provision? Is there a list of such organisations, or do you have to find out by chance? Similarly how do you find out which organisations have a chat facility online except by trying them? eg if you wanted an insurance company with chat. When you say telephone with text, Barry, do you mean this relay service? Thanks x
      Hi Heather,

      what I’m referring to is the chat facility on many businesses website. I don’t know if you can search this facility but Ellie has posted a useful link.
      I’m going to do this even if it kills me!

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        #18
        I have something i want to complain about. My husband has an account with a bank. Well we have a joint account and we phoned because we forgot our password. We couldn't use the online thing we were told to phone after reaching a certain stage in our new security set up. Stephen tried to talk but he was having problems but I took over. I was told they wouldn't talk to me I couldn't even be in the room. A problem with recalling our postcode and we were cut off. Next day called again. On the phone so long, we had to go through whole thing again, eventually our phone ran out of credit so once again cut off. Phoned back using landline go through procedure again until our landline battery went flat. Phoned back apparently we have telephone banking set up so we used this to move money. We had forgotten about this but they didn't think to help us. I had explained to them about Stephens health situation and how this would eventually be a problem. They wanted to pass us on to another department to set something up. After 2 days and spending a fortune we passed on the offer. All I can say is there are some very unhelpful businesses out there who have no idea what its like as a customer.
        when i can think of something profound i will update this.

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          #19
          We should name them and shame them.
          when i can think of something profound i will update this.

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            #20
            Originally posted by denise View Post
            We should name them and shame them.
            Go on then. 😁
            Each day is made easier with a bit of humour.

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              #21
              First direct
              when i can think of something profound i will update this.

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                #22
                This is a disgrace Denise. In this day and age we should expect a better service. I would be inclined to email the bank and suggest you will report it as disability discrimination. Because of your dire situation it’s worth reminding all our members to arrange joint bank or building society accounts. There will come a time when you need access to money quickly and if the account holder is deceased it can take weeks to resolve.

                Hugs from Barry x
                I’m going to do this even if it kills me!

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                  #23
                  Would an LPA address that, Barry?
                  Each day is made easier with a bit of humour.

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                    #24
                    I have lpa. I think the whole experience was disgraceful.
                    when i can think of something profound i will update this.

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                      #25
                      Originally posted by GaryM View Post
                      Would an LPA address that, Barry?
                      It would Gary but it takes time to register a death and contact the various authorities. I speak from experience as my aunt died 3 days ago.
                      I’m going to do this even if it kills me!

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                        #26
                        Originally posted by Barry52 View Post

                        It would Gary but it takes time to register a death and contact the various authorities. I speak from experience as my aunt died 3 days ago.
                        Sorry to hear that Barry52 .
                        Each day is made easier with a bit of humour.

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                          #27
                          My GP knows I can't talk but I had to go and explain
                          to his receptionists that I need communication via email or text these days. Disability awareness is shameful in this country. 😠
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                            #28
                            Originally posted by matthew55 View Post
                            My GP knows I can't talk but I had to go and explain
                            to his receptionists that I need communication via email or text these days. Disability awareness is shameful in this country. 😠
                            Even amongst people who regularly deal with disabled people. 🙄
                            Each day is made easier with a bit of humour.

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