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Damn these hyper reflexes

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    Damn these hyper reflexes

    How far does a glass of pineapple juice go? Quite a long way covering me, the hob, my kitchen appliances and the floor. All due to a car alarm going off when I am taking my morning tablets. I wish there was a way of controlling this symptom since I am spending an inordinate amount of time cleaning up after me.

    I realise to some of you this may appear to be a minor issue compared with what you are going through daily but for me it is another problem adding to the other challenges of life with MND. If it wasn’t for the chance to vent here with you guys I would go mad.

    Bad day Baz
    I’m going to do this even if it kills me!

    Oh dear - better not let you inside a shop in your scooter in case you're startled, hand on accelerator, and do a Podge 😂😂

    I have to agree that hyper reflexes can get one in trouble but it can be funny to have an unsuspecting medical professional sit in front of me to examine my reflexes 🤫 Or when the carer is happily washing my hair that my leg on the side she's washing shoots out and catches her off-guard 😲

    Anyway, glad that you managed to stay upright!

    Love Ellie.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      stephen had the same problem. bottle of water everywhere. thank goodness it was only water on a tiled floor. he brought me in a cup of coffee and it went everywhere and then he went back for his own and did the same. it's odd he doesnt have a problem with his reflexes for a while and then a few in a row. i wish a warning was given especially if he is holding something hot or even sticky.
      when i can think of something profound i will update this.


        Vent as much as you want Barry. I’ve knocked drinks off my side table with my wayward hand after I’d put said glass down. Very frustrating indeed but my husband does the clean ups. Lynne
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.