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Nearing the End

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  • podgeuk
    replied
    Wishing you and your family all the best. My thoughts are with you all.

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  • Heather R
    replied
    Sending love to you and your family, Lesley. Heather x

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  • denise
    replied
    My love to all of you.
    a big hug and I will be thinking of you.
    Denise xxx

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  • LesleyJ
    replied
    Thank you Matthew, Jane & Ellie xx

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  • Jane northwales
    replied
    My thoughts are with you and your family xxx

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  • matthew55
    replied
    You're in my thoughts and prayers

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  • Ellie
    replied
    This is an extract from the MNDA's 'End of Life' info sheet:

    For people using ventilation, the palliative
    care team will be able to offer advice about
    when it might be best to discontinue its use.

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  • LesleyJ
    replied
    Thanks for your kind words Ellie. Is that right about the NIV??

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  • Ellie
    replied
    I'm sorry to hear about this, Lesley.

    I'll just say that it's unusual for NIV to still be used once midazolam and morphine are being administered through a syringe driver.

    Glad to hear your beloved Mam is not in any distress.

    Wishing you much strength over the coming days.

    Love Ellie.

    Leave a comment:


  • LesleyJ
    started a topic Nearing the End

    Nearing the End

    Hi

    My wonderful Mam is at the end of her battle with this hideous disease. She has been asleep now for 6 days, is on her NIV 24/7 and no communication. She has a syringe driver full of morphene and modazalam which has been increased regularly. Our specialist MND nurse and the consultant cannot believe she is still with us. She is made of strong stuff. It’s torture for us seeing her in this state and are hoping it will end for her soon (she would have hated this).
    Lesley xx
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