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A new experience I never want to repeat

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    Ellie
    Forum Member

  • Ellie
    replied
    Guy
    Forum Member
    Guy Thanks Robin, nice to hear from you.

    The lesser of two evils seems to be the theme ๐Ÿ˜

    Love Ellie.

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  • Graham
    Forum Member

  • Graham
    replied
    Hi Barry,

    It's MND related. Bulbar related due to the mouth muscles slowing. I insist on quietness while I am eating and I always watch the news when eating. Watching something funny is a recipe for disaster. I must concentrate or else there is a price to pay.

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  • Barry52
    Forum Member

  • Barry52
    replied
    Thanks to Ellie for post on nasal regurgitation. My family know that I would resist the heimlich manoeuvre as normally I can cough up food that sticks in my throat.

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  • Guy
    Forum Member

  • Guy
    replied
    Our MND consultant told my wife (who is a retired midwife ) to use the Heimlich manoeuvre if I was choking, Ellie. He did say it could lead to inhalation of some material and aspiration pneumonia, but that was better than choking to death. Great bedside manner!

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  • matthew55
    Forum Member

  • matthew55
    replied
    Back in the day I was trained in first aid by The Red Cross and St John's Ambulance, both said that it is the last resort even if you know what you're doing. ๐Ÿ˜x

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  • Ellie
    Forum Member

  • Ellie
    replied
    GaryM
    Forum Member
    GaryM I have asked various medical professionals about using the Heimlich Manouevre vis-ร -vis having a feeding tube in place and always got similiar replies:

    It should only be used in a full-blown choking episode, ie the person is unable to breathe, cough or speak, and there is a risk of death. Many 'choking' incidents are not as such, although they sure may feel like it at the time. And, most people who attempt the Heimlich, do it incorrectly.

    That said, I was told that, in a life and death situation, a ruptured stoma is the least of my worries ๐Ÿ˜

    It'd be interesting to hear what you or others would be/were told, on asking your doctor the question.

    Just to add that death by choking in ALS/MND is very rare indeed - most of us have some form of modified diet or go nil-by-mouth for safety.

    Love Ellie.

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  • Ellie
    Forum Member

  • Ellie
    replied
    Nasal Reguritation (not mealtime reading!)

    Yes, food and liquid coming out through the nose is part and parcel of swallowing problems (dysphagia) - MND, the gifts they keep a coming ๐Ÿ˜ฎ

    My soft palate is very weak (can't do its job too well) and my swallowing muscles are pretty shot, so I regularly get coffee and water dripping from my nostrils (not one from each nostril, I mean as I'm drinking either ๐Ÿ˜‚) It's made worse because I lean forward to drink.

    Nasal regurgitation is why I always have antisickness meds in my house and why I said vomiting would be catastrophic for me - that's why I also advised people with bulbar involvement to have a stock of antisickness meds, just in case!

    It's disappointing to hear that not all SLTs or Dietitians advise people that A) it can happen and B) how to handle it... If it's happening to you and you haven't spoken to your SLT or Dietitian about it, please do.

    Safe eating and drinking everybody!

    Love Ellie.

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  • Barry52
    Forum Member

  • Barry52
    replied
    It would appear that this is a common problem but I have not heard any mention from the dieticians or SLTโ€™s.

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  • Nettie
    Forum Member

  • Nettie
    replied
    Originally posted by Barry52 View Post
    I was enjoying dinner last night until I chocked on a piece of meat. I was trying to cough it up and it ended in my nasal cavity which was very unpleasant and painful. After a breathless and anxious 20 minutes the piece of meat dislodged and I managed to cough it out. I have experienced this before with liquids but never solids. I am wondering if this is MND related or something else.

    Barry
    Oh Barry , I feel for you I did exactly the same last week I sneezed while I had food in my mouth the food ended in my nose cavity like yours when I eventually managed to snort it out it flew back down my throat and choked me again!! Iโ€™ve not been the same since, I hope youโ€™re ok now love Janette x

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  • GaryM
    Forum Member

  • GaryM
    replied
    Originally posted by matthew55 View Post
    Well it breaks ribs so I don't think it matters much ๐Ÿ˜ƒ
    ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

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  • Deb
    Forum Member

  • Deb
    replied
    That sounds a very scary experience, Barry.

    So glad you're feeling better today although you must feel sore. I hope you enjoy your creme brulee. It sounds delicious.

    This keeps spell checking brulee to bruised, which is appropriate.

    Take care,
    Love Debbie x

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  • denise
    Forum Member

  • denise
    replied
    Gary makes a good point about the Heimlich manoeuvre.

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  • Barry52
    Forum Member

  • Barry52
    replied
    Thanks for your concerns guys. I am feeling better today but my nose is streaming. Tonight I may have creme brรปlรฉe that I abandoned. It has cherries soaked in grand marnier in the base.

    Barry

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  • Lynne K
    Forum Member

  • Lynne K
    replied
    Oh Barry, what a scare. Iโ€™m glad that you sorted it out eventually. About the painful episode of meat in your nasal cavity, Iโ€™ve done similar. It was a rather long time ago so I canโ€™t remember if it was before MND or at my early stage. That was certainly horrid feeling. Lynne

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  • matthew55
    Forum Member

  • matthew55
    replied
    Well it breaks ribs so I don't think it matters much ๐Ÿ˜ƒ

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