My Day in Breathing Centre Ward

[matthew55]

Thank you both xxx

[Deb]

Yippee Matthew. You deserve some good news . X

[Ellie]

Oh, that's Fab-u-lous Dahling 🥳🥳

[matthew55]

Well today I had good news for a change in that my breathing is still normal. 😃👍x

[Lynne K]

GaryM, we were in Bury until moved into this adapted flat in Radcliffe nearly two years ago. Lynne x

[Lynne K]

Ellie thanks. It did give me a lift in my feelings.I tried to answer you last night but kept getting an error message. Lynne x

[GaryM]

Thanks Barry, Jeanette and Mathew.

Jeanette and Mathew, we must be all be fairly near to each other in Greater Manchester going to the same hospitals. But Greater Manchester is so large isn’t it. Wythenshaw must be very busy since it’s the whole North West’s Breathing Centre. Lynne

I'm sure we had this discussion on another thread. I'm under Salford too. I spent first sixty years in Tameside, then moved to Bury two years ago.

[Ellie]

Oh Lynne, that's great news - hope it has given you a boost - keep up your good work.

I, for one, don't miss the hours spent at a clinic appt - yes, it's very beneficial to see lots of different disciplines, but I'm fit for the knacker's yard after it (luckily we don't pass one on the way home or the Mr would leave me there 😃) Home visits and video calls are much more comfortable, one Covid pandemic benefit!

Love Ellie.

[matthew55]

Me I'm in sunny Leigh 😆x

[Nettie]

Thanks Barry, Jeanette and Mathew.

Jeanette and Mathew, we must be all be fairly near to each other in Greater Manchester going to the same hospitals. But Greater Manchester is so large isn’t it. Wythenshaw must be very busy since it’s the whole North West’s Breathing Centre. Lynne

Yes I think we must be I’m in Stalybridge Tameside 😊

[Lynne K]

Thanks Barry, Jeanette and Mathew.

Jeanette and Mathew, we must be all be fairly near to each other in Greater Manchester going to the same hospitals. But Greater Manchester is so large isn’t it. Wythenshaw must be very busy since it’s the whole North West’s Breathing Centre. Lynne

[matthew55]

I am having a face to face on Wednesday with the Breath people in Salford. I'm hoping I'm good enough to get to the Dental Hospital to have my canines removed. Then I definitely won't be able to pull anymore 😉😃x

[Nettie]

I too go to Wythenshawe but had not been seen since January, so a nurse came out to see me on Wednesday, she said everything was fine but wants me to be seen day case for a cough assist just in case I need it, but she she also said any future appointments would be at home. Janette x

[Barry52]

Hi Lynne,

I’m pleased you had a perfect review and your care team are obviously well organised. I wouldn’t concern yourself with the weight gain as I find my weight has increased due to lack of mobility and my love of food. Many of our friends have the opposite problem with weight loss and I hate this disease for that. I am using my exercise bike to try to maintain a balance but some days it seems like an effort.

I agree that the system used by the NHS for online communication is rubbish but I understand they are gradually coming round to adopting more user friendly systems like zoom.

Love Barry x

[Lynne K]

Yea Debbie, I met 3 of the breathing team, including the specialist (a female who’s name I forget), the head breathing interventions nurse and another specialist nurse at my last face to face clinic appointment. I’d asked my neurologist about breathing interventions so she referred me to the team and arranged for me to meet them in my usual clinic space in Salford. They answered my questions and said that they’d make me an appointment for a full day and maybe overnight at their unit in Wythenshaw.

I’ve had online meetings with my neurologist too but the system that she had to use was hopeless. We couldn’t hear one another whilst the video picture of us was on so she had to turn it off as that improved the sound. The NHS is sadly not the best technological.

Lynne x