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  • Ellie
    replied
    Welcome Lullah and thanks for your lovely post.

    Love Ellie.

    Leave a comment:


  • denise
    replied
    Yeah we are past being fussy! 😁😄😉

    Leave a comment:


  • matthew55
    replied
    Why doesn't your friend join us? We talk to anyone 😃x

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Hi I never post on here as I don't have Mnd but my friend was diagnosed 3 years ago. I just wanted to say I read all of your posts daily and it really helps me.

    I admire you all so much and the support you all give. Your humour often makes me giggle.

    My friend is 36 with two young kids and it's the most devasting illness I can think of. She is such a trooper and still manages to crack a smile on her darkest days.

    Thank you so much

    Xx
    ​​

    Leave a comment:


  • Nettie
    replied
    I agree totally, I don’t always post on here because I don’t always know how to put what I want to say, but I try and look in every day just to see how everyone is doing and I know I can always find the answer to almost anything on here from you knowledgeable folk Janette x

    Leave a comment:


  • Lizzie
    replied
    I couldn’t agree more. We have each other and that is so precious. Matthew, you’re a star, and so brave to disclose your innermost feelings. Like you, I moved around a lot when I was younger and never quite “settled” into long friendships. I feel I can trust you guys with my thoughts and feelings. Love comes from sharing, even in the most tragic and difficult of circumstances. Love to you all.
    Lizzie x

    Leave a comment:


  • Olivia H
    replied
    I agree, and there is a difference between pity and empathy. We all have very different experiences of this illness, but even at its best, it's a sledge-hammer to what we had before. I remember a young guy with MND, no longer with us sadly, saying 'today will always be my best day' because with this, you don't improve next week or next year....And it's good to have the best company on your best day🙂

    Leave a comment:


  • Deb
    replied
    I totally get this ! Sometimes its as if the only people who understand the difficulties are on here.

    That said it must be hard for friends and family because there's a fine line between trying to understand and showing pity. ( noooo !) I think people don't want to think about the practical and emotional difficulties we face on a daily basis. Who would ?

    Its good we have each other on here.💕
    Love Debbie X😘

    Leave a comment:


  • Ellie
    replied
    Awww mate, I'm tearing up...

    Nobody really gets what we're going through, that why anybody and everybody affected by an MND is welcome to hang out here.

    Leave a comment:


  • Barry52
    replied
    I second your thoughts Matthew. My 8 year journey without this forum would have been hellish. Every time you have a set back the guys on here pick you right up again.

    Love and hugs to all.

    Barry

    Leave a comment:


  • denise
    replied
    I am with you all the way. I don't think I would cope at all. I feel so alone you wouldn't believe. At least I know I can look on here and have someone to share with.
    love you all
    Denise xxx

    Leave a comment:


  • matthew55
    started a topic Disclosure

    Disclosure

    I know I joke but this forum really is the only contact I have with the outside world. When I was young my parents moved around alot and I went to thirteen different schools in thirteen different places hence I avoided making friends. That never bothered me before but being mute it's often scary. Twitter and the other normal social platforms are too much information and too impersonal for me. So that leaves here. Oh and it's the only place where no one treats me with sympathy or pity and not as a moron. I love you guys more than you know, or maybe now you do. Have a safe day. x
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