Now that I am unable to form words a horrible new reality is revealed. People think that because I have nothing to say there is no point in talking to me. If you know someone who is like me then please God talk to them. π
Announcement
Collapse
No announcement yet.
Being mute
Collapse
X
-
Hi Matthew ,that must be so hard not to be able to speak and of course something we all dread.Thank goodness there is technology that hopefully offers some form of communication.To be excluded from conversation must be so hard.I have tried to explain to family and friends if the time comes when my speech is no longer I do still want to hear there news as normal.I hope you have some technology stuff that helps you communicate somehow.Best wishes to you .Mary
- 1 like
Comment
-
Mathew, it is horrid to feel that you are being ignored where others are chatting. I remember about twelve months ago we were having a meal out with family (my husbandβs side). Everybody was talking around the table. I tried to join in but they couldnβt hear me over their own loud voices and I couldnβt talk any louder also I was slower than Iβd been before. Itβs was so hard, frustrating and tiring that I gave up. On the way home my husband said to me βyou were quiet tonight.β I could have cried.
I can still speak but only in short bursts and then it goes. My husband frequently gets the wrong end of the stick because he responds to what I have said thus far. I have had to say hundreds of times βI hadnβt finished and I was going to say ......(this).β Also when I speak to him 6 out of 10 times he says βwhat was thatβ so I have to repeat myself often and sometimes the same thing 2 or 3 times. Go figure! I have no such problem with my daughter. We chat, she waits for me to finish. Thatβs nice. Oh for a solution with those who donβt get it. Love and hugs π€ π€, LynneLast edited by Lynne K; 5 December 2020, 23:47.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
I'm staying positive and taking each day as it comes.
- 3 likes
Comment
-
I get why people kill others.
oh Lynne I read your email earlier this morning. I was so angry and upset I couldn't say anything. I would like to box your husbands ears. What an insensitive (nasty swear word) he is and his whole family. Honestly I am so πΉ I'm stuck for words. If I'd been there I would have embarrassed them into taking notice. Not in a horrible way but in a way that they would recognise what ignorant people they are. Love and hugs to you. I would wipe them all off your Christmas list.
π
Comment
-
Thanks Denise, you certainly understand that situation but they are all totally different one to one, nice people. I think that itβs ignorance when they have no thoughts for the person with speech problems (me in that instance). We donβt want people to make a fuss of us, well I donβt but consideration would go a long way. About my husband: Iβm working on it as always. Love LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
I'm staying positive and taking each day as it comes.
- 3 likes
Comment
Comment