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    My life

    I have been a company director, a manager, a supervisor, a team leader and a bod in my 55 years so my last appointment in Neurology was like. I can't speak and I'm in a room with three other people so I get my boogie board out and start to write. Whilst doing this a line of drool comes out my mouth and the nurse immediately gets me a paper towel. MND does more than just kill you.

    #2
    Matthew what can I say apart from β€˜MND is absolute..........(Fill in word of your choice) β€˜
    Richard
    Richard

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      #3
      It's okay I'm not looking for sympathy rather I'm trying to explain to a carer of a proud of a proud liver and non livers what it is really like being us. πŸ˜‰πŸ˜ƒ

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        #4
        Oh Matthew I can only send love and hugs. 😚

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          #5
          Love and hugs from me too, Matthew.

          Others might not agree but I find the lack of dignity due to MND the hardest thing to accept. I am often upset about the help I need in the bathroom. It was the thing I feared most when I was diagnosed.... I guess you do learn to accept it but I have struggled with it.

          Its best not to stop and think and focus on the positives but we are only human.
          Love Debbie xxx

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            #6
            The peaceful pill handbook, have you read it?

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