I have been a company director, a manager, a supervisor, a team leader and a bod in my 55 years so my last appointment in Neurology was like. I can't speak and I'm in a room with three other people so I get my boogie board out and start to write. Whilst doing this a line of drool comes out my mouth and the nurse immediately gets me a paper towel. MND does more than just kill you.
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Matthew what can I say apart from βMND is absolute..........(Fill in word of your choice) β
RichardRichard -
It's okay I'm not looking for sympathy rather I'm trying to explain to a carer of a proud of a proud liver and non livers what it is really like being us. ππBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Oh Matthew I can only send love and hugs. πwhen i can think of something profound i will update this.Comment
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Love and hugs from me too, Matthew.
Others might not agree but I find the lack of dignity due to MND the hardest thing to accept. I am often upset about the help I need in the bathroom. It was the thing I feared most when I was diagnosed.... I guess you do learn to accept it but I have struggled with it.
Its best not to stop and think and focus on the positives but we are only human.
Love Debbie xxxComment
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The peaceful pill handbook, have you read it?Comment
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