My life

[DJW]

The peaceful pill handbook, have you read it?

[Deb]

Love and hugs from me too, Matthew.

Others might not agree but I find the lack of dignity due to MND the hardest thing to accept. I am often upset about the help I need in the bathroom. It was the thing I feared most when I was diagnosed.... I guess you do learn to accept it but I have struggled with it.

Its best not to stop and think and focus on the positives but we are only human.
Love Debbie xxx

[denise]

Oh Matthew I can only send love and hugs. 😚

[matthew55]

It's okay I'm not looking for sympathy rather I'm trying to explain to a carer of a proud of a proud liver and non livers what it is really like being us. 😉😃

[richard]

Matthew what can I say apart from ‘MND is absolute..........(Fill in word of your choice) ‘
Richard

[matthew55]

I have been a company director, a manager, a supervisor, a team leader and a bod in my 55 years so my last appointment in Neurology was like. I can't speak and I'm in a room with three other people so I get my boogie board out and start to write. Whilst doing this a line of drool comes out my mouth and the nurse immediately gets me a paper towel. MND does more than just kill you.