Cold feet

[jd58]

My feet are always freezing cold even though I wear thick thermo socks. I can't feel my feet temp so it does not affect me. Its this sign of neurone damage because of the disease? At night in bed my feet warm up under the duvet.

[matthew55]

My feet have been freezing since onset. A few hot days last micro summer were the only days I didn't wear four pairs of thermal socks and microwave heated slippers. 😃😃x

[Shaun]

Sorry JD it’s the mnd I’m having to wear thick thermal socks and thermal gloves, indoors !!! My hands don’t work when it’s cold, cant feel my finger tips at the moment , reduced blood circulation, roll on summer please
s

[jd58]

Ok sorry hear about you hands Shaun

[Ellie]

Yep John, my feet (knees down, in fact) feel deathly cold too - it's the perfect storm of poor circulation in unmoving legs coupled with atrophied muscles.

I wear thermal socks, use rechargeable insoles, hot wheat packs, whatever it takes. Elevating the legs helps circultion (that's why they can warm up in bed) as does massage and moving the joints, but it doesn't mean they stay warm for long...

Oh the joys 🙄

Love Ellie.

[Mary C]

I have the same trouble and even developed chilblains on the more affected foot.Long socks seem to help a lot..Hope you find something thats works for you.Best wishes Mary

[Lynne K]

I’ve always had cold hands and often cold feet. MND has made these worse. I bought fine gloves that have silver in from a reynards (excuse my spelling) site. These are great and I can still use my phone and iPad when I’m wearing them. I bought slippers from the same site but they’re uncomfortable. But my husband bought me boot type slippers and they’re great. Lynne

[Nettie]

I wish my hands & feet were cold, mine are the other way round in fact my whole body always too hot 🥵

[denise]

Trust you janette!
we've been complaining about cold feet. Stephen ok during the day but night time he's cold. I've hunted out some big chunky socks but I really struggle getting them on his feet. Anyone got any ideas?

[jd58]

Matalan sells them thermo socks

[denise]

It's 2C in my kitchen ⛄🦌

[Andy wilson]

Hi every one just been diagnosed with mind andlistening to people's posts is scary as all I have is a little muscule loss in my left hand,not looking forward to this horrible disease. Also hav,nt started taking the tablets, do they actually prolong life and is it worth it sorry if I sound down but only found out on Dec 17 .

[Ellie]

Andy wilson If you're talking about Riluzole, type the word into the search box and you'll find various threads on it. General consensus is, yes to take it. You should get regular blood tests to make sure your liver is tolerating it. And, if people get other side effects - fatigue, nausea, for example - these typically lessen over time.

It is your choice to take it, or not.

Love Ellie.

[Deb]

Hi Andy,

Please don't ever say sorry for sounding down. You are doing well to join the forum so soon after being diagnosed. It took me a long time to accept my diagnosis and post on here .

The early days are totally overwhelming so try to take one day at a time.. easier said than done I know. Things do get easier to accept and although we are all on a similar journey people have a different progression.

Take care,
Love Debbie x

[Mazswann]

I have bulbar onset 20 months now .
im really scared cause I can’t feel my feet,
is that it? Wheel chair now. I’m having trouble breathing now lots of plemm
i can’t bare this fucking disease😓😓😓