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My living with update

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    My living with update

    MND is devastating true, but not all changes are that massive. For me the lack of ear wax and my top lip getting stuck in strange positions are not life changing; just yet another thing! 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    Lack of ear wax 😄 oh Matthew you certainly come up with some things. That could be anything surely?
    when i can think of something profound i will update this.

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      #3
      If it looks like a donkey, smells like a donkey and sounds like a donkey it's a donkey. 😉😁x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        Figures as a donkey has big ears. Not sure if they have ear wax problems 🤔
        when i can think of something profound i will update this.

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          #5
          I was thinking more about Shrek 😉😁x
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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            #6
            Shriek isn't a donkey 🐴
            when i can think of something profound i will update this.

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              #7
              Shrek not shriek.
              when i can think of something profound i will update this.

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                #8
                I think we're alone here 😉😂x
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                  #9
                  I think everyone else has given up and fallen asleep.
                  Winnie the pooh had a donkey called (Ok can't spell his name eeyor or similar) again don't recall an ear wax problem?!
                  when i can think of something profound i will update this.

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                    #10
                    Well neither have I quite the opposite 😉😂x
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                      #11
                      Not sure if you need a doctor or a vet?!
                      when i can think of something profound i will update this.

                      Comment


                        #12
                        Originally posted by denise View Post
                        I think everyone else has given up and fallen asleep.
                        Winnie the pooh had a donkey called (Ok can't spell his name eeyor or similar) again don't recall an ear wax problem?!
                        If Eeyore suffered from excess ear wax, we'd certainly have heard about it. 😂

                        Also, I'll look forward to the lack of ear wax, as I can't reach it anymore. 😉
                        Each day is made easier with a bit of humour.

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                          #13
                          Yes I've never had much ear wax, but now find I do wake up occasionally with my top lip dried in a funny position, and think I must look weird
                          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                            #14
                            Originally posted by Heather R View Post
                            Yes I've never had much ear wax, but now find I do wake up occasionally with my top lip dried in a funny position, and think I must look weird
                            And not be able to lick your lips to free them.
                            Each day is made easier with a bit of humour.

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                              #15
                              I can't remember when I last licked my lips.☹️
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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