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Eureka!!!!

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    Eureka!!!!

    I have finally figured out my bowels! The problem is I have no push available. Nada. I have to wait for things to take their course which means hours of reading. I was told by my Neurologist that MND doesn't effect this. Well we are all different eh? πŸ˜‰πŸ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    How can there be roughage in your diet if everything is whizzed or from a bottle? If the bowel has nothing to work with it's going to be a problem. Perhaps more veg and fruit. I've got a list here are you still whizzing a good balanced meal? If you write down what you eat every day you might figure out what works for you.
    πŸ™„

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      #3
      It's nothing to do with how hard or soft it is. Next time you do the same think about how you're doing it. As I said I have zero muscle control in that area. Funny thing is if I had said my arm wasn't working that would have not got a response. Before diagnosis it could be anything, After it's only one thing. πŸ˜‰πŸ˜x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        I've had stomach problems for years. Seems it's a family problem. I honestly don't have to think about it πŸ˜•

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          #5
          Pince your nose with toilet paper and attempt to clear nose keep mouth shut pushes poo out

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            #6
            Ha πŸ˜‚πŸ€£ I can see all trying the nose holding! it's just as well Matthew doesn't have an outside loo or he would have frozen to death.
            in our basement we had two very large earth toilets. I can picture sitting there with the goats and chickens! 😞

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              #7
              I'm used to being cold so it doesn't bother me. I have tried holding my nose but it's hopeless. Sigh 😊x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                Neurologist told me MND wouldn’t make me incontinent, didn’t say it would give constipation. I take half a sachet of Laxido each day which helps though I often sit on the loo for an hour or more waiting patiently for a bomb to drop.
                Sporadic MND/ALS - Limb onset - Diagnosed May 2016
                night time NIPPY, cough assist, PEG (not currently used)


                Today is the tomorrow I feared yesterday

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                  #9
                  WARNING the following text may spoil your appetite.......

                  The way it works for me is I feel pain and movement in my stomach followed by activity lower down, thankfully my sphincter is still strong, then it's off to read for a couple of hours. I never know what I will get but anything is gratefully received. On a brighter note I have tasted ginger again after using a flavoured coffee. It's worth the half box of extra large Kleenex that goes with drinking it. 😁x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    AndyB I wonder if taking more than half a sachet would mean the bomb drops sooner? (The Lancaster would not have been as succesful if it had an hour's wait for its munitions to drop πŸ˜‰)

                    Maybe 75% of the made up solution and see if that works? (Unless of course you're escaping to the loo for some peace and quiet 😁)

                    Love Ellie.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      Ellie, the Lancaster is doing a fine job, I wouldn’t want a whole squadron. πŸ˜€

                      Andy x
                      Sporadic MND/ALS - Limb onset - Diagnosed May 2016
                      night time NIPPY, cough assist, PEG (not currently used)


                      Today is the tomorrow I feared yesterday

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                        #12
                        On a more serious note, I asked my consultant whether I would end up needing a colostomy because of the MND and he said extremely unlikely. Main reason for the question was the TV programme about "Peter the human cyborg".
                        Each day is made easier with a bit of humour.

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                          #13
                          What's so bad about a bag? I have noticed that consultants tend to believe that they are the ONLY one who knows. 😠
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            I just didn't fancy the operation or having to cope with one afterwards. My dad had problems with his now and then.
                            Each day is made easier with a bit of humour.

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                              #15
                              Originally posted by GaryM View Post
                              I asked my consultant whether I would end up needing a colostomy because of the MND and he said extremely unlikely.
                              The Consultant is correct in using the word needing in relation to a colostomy, however, some people want to go down that route for "convenience sake", as determined by their situation. Peter Scott-Morgan did not need a colostomy, but wanted one. It isn't that common but various Forum members over the years have had a colostomy and, those who do have them, usually also have a suprapubic catheter.

                              Medics and semantics, eh 😬
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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