I have finally figured out my bowels! The problem is I have no push available. Nada. I have to wait for things to take their course which means hours of reading. I was told by my Neurologist that MND doesn't effect this. Well we are all different eh? ππx
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Eureka!!!!
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How can there be roughage in your diet if everything is whizzed or from a bottle? If the bowel has nothing to work with it's going to be a problem. Perhaps more veg and fruit. I've got a list here are you still whizzing a good balanced meal? If you write down what you eat every day you might figure out what works for you.
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It's nothing to do with how hard or soft it is. Next time you do the same think about how you're doing it. As I said I have zero muscle control in that area. Funny thing is if I had said my arm wasn't working that would have not got a response. Before diagnosis it could be anything, After it's only one thing. ππx
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Neurologist told me MND wouldnβt make me incontinent, didnβt say it would give constipation. I take half a sachet of Laxido each day which helps though I often sit on the loo for an hour or more waiting patiently for a bomb to drop.Sporadic MND/ALS - Limb onset - Diagnosed May 2016
night time NIPPY, cough assist, PEG (not currently used)
Today is the tomorrow I feared yesterday
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WARNING the following text may spoil your appetite.......
The way it works for me is I feel pain and movement in my stomach followed by activity lower down, thankfully my sphincter is still strong, then it's off to read for a couple of hours. I never know what I will get but anything is gratefully received. On a brighter note I have tasted ginger again after using a flavoured coffee. It's worth the half box of extra large Kleenex that goes with drinking it. πx
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AndyB I wonder if taking more than half a sachet would mean the bomb drops sooner? (The Lancaster would not have been as succesful if it had an hour's wait for its munitions to drop π)
Maybe 75% of the made up solution and see if that works? (Unless of course you're escaping to the loo for some peace and quiet π)
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by GaryM View PostI asked my consultant whether I would end up needing a colostomy because of the MND and he said extremely unlikely.
Medics and semantics, eh π¬
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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