Eureka!!!!

[matthew55]

I have finally figured out my bowels! The problem is I have no push available. Nada. I have to wait for things to take their course which means hours of reading. I was told by my Neurologist that MND doesn't effect this. Well we are all different eh? 😉😁x

[denise]

How can there be roughage in your diet if everything is whizzed or from a bottle? If the bowel has nothing to work with it's going to be a problem. Perhaps more veg and fruit. I've got a list here are you still whizzing a good balanced meal? If you write down what you eat every day you might figure out what works for you.
🙄

[matthew55]

It's nothing to do with how hard or soft it is. Next time you do the same think about how you're doing it. As I said I have zero muscle control in that area. Funny thing is if I had said my arm wasn't working that would have not got a response. Before diagnosis it could be anything, After it's only one thing. 😉😁x

[denise]

I've had stomach problems for years. Seems it's a family problem. I honestly don't have to think about it 😕

[jd58]

Pince your nose with toilet paper and attempt to clear nose keep mouth shut pushes poo out

[denise]

Ha 😂🤣 I can see all trying the nose holding! it's just as well Matthew doesn't have an outside loo or he would have frozen to death.
in our basement we had two very large earth toilets. I can picture sitting there with the goats and chickens! 😞

[matthew55]

I'm used to being cold so it doesn't bother me. I have tried holding my nose but it's hopeless. Sigh 😊x

[AndyB]

Neurologist told me MND wouldn’t make me incontinent, didn’t say it would give constipation. I take half a sachet of Laxido each day which helps though I often sit on the loo for an hour or more waiting patiently for a bomb to drop.

[matthew55]

WARNING the following text may spoil your appetite.......

The way it works for me is I feel pain and movement in my stomach followed by activity lower down, thankfully my sphincter is still strong, then it's off to read for a couple of hours. I never know what I will get but anything is gratefully received. On a brighter note I have tasted ginger again after using a flavoured coffee. It's worth the half box of extra large Kleenex that goes with drinking it. 😁x

[Ellie]

AndyB I wonder if taking more than half a sachet would mean the bomb drops sooner? (The Lancaster would not have been as succesful if it had an hour's wait for its munitions to drop 😉)

Maybe 75% of the made up solution and see if that works? (Unless of course you're escaping to the loo for some peace and quiet 😁)

Love Ellie.

[AndyB]

Ellie, the Lancaster is doing a fine job, I wouldn’t want a whole squadron. 😀

Andy x

[GaryM]

On a more serious note, I asked my consultant whether I would end up needing a colostomy because of the MND and he said extremely unlikely. Main reason for the question was the TV programme about "Peter the human cyborg".

[matthew55]

What's so bad about a bag? I have noticed that consultants tend to believe that they are the ONLY one who knows. 😠

[GaryM]

I just didn't fancy the operation or having to cope with one afterwards. My dad had problems with his now and then.

[Ellie]

I asked my consultant whether I would end up needing a colostomy because of the MND and he said extremely unlikely.

The Consultant is correct in using the word needing in relation to a colostomy, however, some people want to go down that route for "convenience sake", as determined by their situation. Peter Scott-Morgan did not need a colostomy, but wanted one. It isn't that common but various Forum members over the years have had a colostomy and, those who do have them, usually also have a suprapubic catheter.

Medics and semantics, eh 😬