I have previously written on here about my husband possibly having MND - nearly two years down the line since his first consultation - a few weeks back he was told it might not be MND but something called Myositis............so did all the research, as you do, on that and to be honest it geed him up a bit in the hope that this isn't quite as bad as MND, he's now received a letter saying they don't think he's got Myositis but Chronic Axonal Neuropathy - this is just getting daft now,
How are you supposed to deal with this..........he's still awaiting his "2nd Opinion" appointment at Leeds MND centre - do they just concentrate on MND or will they in fact be able to confirm this new "Suspected" diagnosis ........... of course there are several variants with this but basically its the immune system attacking itself
Anyone heard of this? anyone got it?
Too much to bear
Sue
How are you supposed to deal with this..........he's still awaiting his "2nd Opinion" appointment at Leeds MND centre - do they just concentrate on MND or will they in fact be able to confirm this new "Suspected" diagnosis ........... of course there are several variants with this but basically its the immune system attacking itself
Anyone heard of this? anyone got it?
Too much to bear
Sue
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