During the day my breathing is normal but as soon as I lay down to sleep I have real problems breathing out. I suppose my Best Before date has been brought forward again. ππx
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Hi Matthew,
yes i have same issue. As Ellie suggests get a referral for NIV. I have a NIV machine, a hospital bed which lifts me to 45 degrees for sleeping on my back. You soon get used to it.
Also I have added recently an upside down βvβ cushion from Argos which helps keep me in position for a comfortable nights sleep.
hope this helps
Nick
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matthew55 Good that your levels were normal but there can be quite a difference in CO2 figures - a 4pm CO2 level after being upright all day could be significantly different to a 7am level, having been supine for 8hrs. Hopefully you'll get an overnight Sats monitor from the Wythenshawe which should give a decent picture of your O2 levels throughout the night. (it doesn't monitor CO2)
Be aware that some strong painkillers cause constipation π±π± - just when you thought things couldn't get any worse...
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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