It's a race

[matthew55]

No matter how much Ensure, alcohol, sugar or full fat milk I put in my weight keeps dropping. I'm now 10.5 stone and if it wasn't for my inability to kiss or smile I think I might even be appealing. As it is it's a race between weight and MND for who gets to kill me first. Life is truly a female dog. 😉😁x

[slp]

Hi Matthew

Are you using the Peg? I was in the same position 18 months ago and went down to 7 stone without realising it
I went onto over night feeds and it was amazing how quickly the weight went on
such a relief

I hope you find a solution
Sarah xx

[matthew55]

Yes I'm pegging, I have doubled my input this week so I'll check in a couple of days. I even add butterscotch syrup to every Ensure. 😁x

[Ellie]

How many calories are you getting on an average day - any idea?

[matthew55]

Not a clue sorry. I'm 100% Peg now and today I pegged a nurishment for the first time. Flavoured sponges are in my future. 😉😁x

[slp]

Hi Matthew

do you have a dietitian helping you? It would help to know how many calories you need daily. Have you considered doing overnight feeding? It makes life a lot easier xx

[Ellie]

You kinda need to know what calories you are consuming everyday and to know what you should be aiming for.

I don't know what you take, but those Ensure Compact, for example, contain 300cals so, if that's all you were taking, you would need to have 8 bottles to get 2400cals, which is an average daily calorie requirement for an average man. (I know you are far from being an average man 😂😂) This figure can vary. Ideally a Dietitian should have had a chat with you around the time of your PEG procedure so you not flying blind 🤔

[matthew55]

My dietitian is an immature waste of space. I'm halfway to eight bottles but I'm not over fussed. I know you want me around but I'm seriously not bothered. I don't want it to rule what life I have left I guess. 😁x

[Ellie]

4 bottles a day - well, at least you know why you're losing weight!!

[matthew55]

Well I have decided that from tomorrow I will have eight so remind me in a week and we shall see what we see. 😁x

[Ellie]

Doubling your Ensure intake overnight may make you feel 🤢 not to mention how it may affect your bowels...

Go easy on yourself 😘

[slp]

Matthew my dietitian has put me on extra protein which I have at lunchtime xx it is only a glass full but very good for preventing skin ulcers and gives me extra energy x
Worth a try x

[Ellie]

Ooh, that's interesting Sarah - what's the product?

Thanks,
Love Ellie.

[matthew55]

I'm touched by the concerns truly but don't worry about me. I'll keep you updated on my progress I promise 😁👍x

[slp]

Ellie it's called ProSource a protein liquid supplement for tube feeding only. Made by Nutrinovo. I have two sachet daily xx