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Reasons to be cheerful

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    Reasons to be cheerful

    25 years ago I met a woman who had MS and back then little was known about it and even some who thought it wasn't a real malady. Today I am watching a film made by Netflix in 2017 in which one of the main characters has MS and it is mentioned in it several times. I'm saying this because every time I visit a hospital or GP I check the large display of 'how to' leaflets but I have never found one for how to live with MND. Good things come to those who wait. πŸ˜‰πŸ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    It would just have one line in it saying "Don't make any plans" 😁
    Each day is made easier with a bit of humour.

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      #3
      When I worked for the nhs/pct I put together a few how to brochures. All I can say is looking at everyone's different situation it would have to be a big leaflet. πŸ€”

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        #4
        My point is that newly diagnosed people like us go to that rack and MND isn't mentioned. I remember thinking why couldn't I have got cancer 😁x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          By the time they've figured out you have it you probably know what you needed to know coming on here.

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            #6
            Think yourself lucky, neurology dept at my hospital is located within care for elderly department, so none of the leaflets are relevant, at least I’m prepared if I get past 65 πŸ˜‚
            As long as there’s golf and beer I’m happy

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