Reasons to be cheerful

[matthew55]

25 years ago I met a woman who had MS and back then little was known about it and even some who thought it wasn't a real malady. Today I am watching a film made by Netflix in 2017 in which one of the main characters has MS and it is mentioned in it several times. I'm saying this because every time I visit a hospital or GP I check the large display of 'how to' leaflets but I have never found one for how to live with MND. Good things come to those who wait. 😉😁x

[GaryM]

It would just have one line in it saying "Don't make any plans" 😁

[denise]

When I worked for the nhs/pct I put together a few how to brochures. All I can say is looking at everyone's different situation it would have to be a big leaflet. 🤔

[matthew55]

My point is that newly diagnosed people like us go to that rack and MND isn't mentioned. I remember thinking why couldn't I have got cancer 😁x

[denise]

By the time they've figured out you have it you probably know what you needed to know coming on here.

[Shaun]

Think yourself lucky, neurology dept at my hospital is located within care for elderly department, so none of the leaflets are relevant, at least I’m prepared if I get past 65 😂