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Elevated CO2 levels

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  • Ellie
    replied
    Phew! Always best to check, you wouldn't be the first to be put on CPAP ๐Ÿ™„

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  • jd58
    replied
    BiPAP sorry

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  • Ellie
    replied
    jd58 I hope it's a BiPAP, not CPAP? CPAPs have constant pressure only, more of an effort is required to breathe out against sustained pressure.

    CPAP = continuous positive airway pressure.
    BiPAP = bi-level positive airway pressure. The bi-level meaning 2 levels, one for inhaling and one for exhaling.

    People with MND should only use BiPAP.

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  • jd58
    replied
    I had same problem the ventilation team put me kn a BiPAP machine overnight
    Last edited by jd58; 13 January 2021, 15:34.

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  • denise
    replied
    I imagine if he's smoked from 15-70 it's from smoking ๐Ÿ˜

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  • Ellie
    replied
    Originally posted by denise View Post
    I gather sacs in the lungs become redundant and the co2 doesn't get pushed out properly.
    No, that's what happens if someoneone has COPD, not with ALS/MND - maybe Stephen has it if, as you say, he has smoked for years or the technician assumed he has it.

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  • denise
    replied
    Just had an explanation by a technician come to see Stephen. I gather sacs in the lungs become redundant and the co2 doesn't get pushed out properly. Stephen complains about not enough time between breaths using his bipap machine and thats why. He does sleep well using the machine but does complain of dizziness some mornings. Many years of smoking haven't helped. His oxygen levels are really good.
    been thinking about you Doug I hope you're ok.
    Denise xx

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  • Deb
    replied
    Hi Doug,

    I don't know much about this apart from being told to watch out for headaches and dizziness especially in the mornings.

    I am thinking about you and sending hugs,
    Love Debbie x

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  • Doug Carpenter
    replied
    Yes Matthew, a little.

    Doug

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  • Doug Carpenter
    replied
    Hi Ellie

    Thanks ever so much.

    Love

    Doug x

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  • Nettie
    replied
    Theyโ€™re very good at Wythenshawe โค๏ธ

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  • matthew55
    replied
    I'm going to Whythenshaw (I probably spelt that wrong) Hospital Manchester as they specialise in breathing. Have you tried belly breathing? ๐Ÿ™‚x

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  • Ellie
    replied
    Hi Doug.

    Symptoms tend to be drowsiness, dizziness, fatigue, headaches, disorientation, poor concentration.

    In MND, it is caused by inadequately functioning respiratory muscles meaning we breathe in shallow breaths, while at the same time, unable to effectively breathe out CO2.

    By using NIV (BiPAP) the respiratory muscles get help in the breathing process - a better intake of oxygen and a better expulsion of carbon dioxide - and the CO2 retention issues subside (with the right NIV settings)

    As muscles get weaker and weaker, there comes a time when NIV cannot keep up and, in essence, becomes redundant.

    Because our muscles weaken gradually, CO2 retention can creep up on us almost without us noticing. Do you think you have CO2 retention? You probably haven't had a respiratory assessment recently due to Covid, but your CO2 levels can be checked on earlobe bloods.

    Thinking of you.

    Love Ellie.

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  • Doug Carpenter
    started a topic Elevated CO2 levels

    Elevated CO2 levels

    Please can anyone advise - symptoms, cause, management - on elevated CO2 levels.

    Many thanks!

    Doug
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