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    Cry Baby

    Having been recently diagnosed, I can’t stop myself getting upset and crying. The minute someone says I care about you and wishes me all the best, I start crying. It is not an attractive sight, including odd noises and nose blowing.
    Even watching the news and other programs, when something happens which means something to me, I start crying.
    Before I was diagnosed, I was watching the Last Night at the Proms, and couldn’t stop sobbing when they played Jerusalem and Land of Hope and Glory. I’m as patriotic as the next person but that’s not me.
    Any advice on how to toughen up?

    #2
    Kenny, MND can play havoc with emotions. For some it can be laughing at the wrong time, for some it can be being a bit weepy and for others it can be withdrawing into themselves. Crying doesn’t make you weak it makes you human. As for being tough well coping with MND on a daily basis seems tough enough to me.plus speaking as a male I known it takes a lot of courage to admit your feelings. Just be you Kenny 😉

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      #3
      I was sobbing my heart when I realized what I had. Now I cry when I'm happy. Real Men cry. 😁x

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        #4
        Well Kenny, going by the post's title, you haven't lost your sense of humour!

        You are not alone in being a Cry Baby - if you watch anyone with MND being interviewed, even the tough rugby guys blub, it's entirely understandable. As well as having been dealt a hammer blow to our own life, we're consumed with guilt and fear for our family - a lot to cope with...

        MND also comes with a bonus called Emotional Lability, which heightens our emotions and often mixes up laughing and crying, which can be a wee bit offputting in company!

        I don't think it's a case of toughening up, rather to find a way to manage those emotions - you are grieving for a stolen future, it's a big thing. Counselling is excellent, if you can get it. Even if you don't see yourself as 'that type' (which I did not) it can be life changing. Many with MND take antidepressants which can also help dampen Emotional Lability symptoms.

        Take a read of this: https://www.mndassociation.org/app/u...al-support.pdf

        It's funny how people being nice to us makes us cry and mean people don't 😏

        Don't forget though, having a good old snotty-faced cry can be a much needed release of emotions and cathartic.


        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭

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            #6
            Hi Kenny, its totally understandable to feel emotional ... it's a life changing diagnosis so I think it makes you look at things differently.

            I cry at the simplest of things. My son rang me yesterday to say how we were and said he was proud of how me and his dad were coping in lockdown ... I cried all evening on and off but they were happy tears.

            We try and bottle our emotions but at times its good to let them out. Its a strong person that admits to their feelings.

            Love Debbie x

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              #7
              Hi Kenny
              it takes a bit of time to come to terms with it, but it does get easier. when I was diagnosed I was in the office the day after, kept having to run outside away from anyone have a grizzle then go back and continue as normal,

              thanks Ellie for your explanation, for some reason I have a little tear when watching the repair shop, thought I was just getting soft

              personally I try to keep things as normal as possible and do things to distract, for me keeping busy helps, I’m still working so don’t have much time to worry about it. Don’t sit on your own worrying,
              Another tip stay away from the internet too scary at the moment (except this forum)
              Guess you are still in the emotional part of diagnosis, in a couple of weeks you’ll be in panic mode and organising everything, , we’ve all been there its normal not soft,

              shaun

              As long as there’s golf and beer I’m happy

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                #8
                I have that also, Kenny. I find myself welling up at news items. I don't think I've hardly cried in the thirty years before I got this illness. Now it's a regular thing, almost every day. It doesn't really bother me too much as if I cry when friends or relatives are here then it will probably only evoke sympathy. If they start laughing, they're not friends I want. Sometimes I think it's the result of coping with the effects of the illness. Last week I dropped a plate while carrying it into the kitchen and burst into tears. It was because of the realisation that my arm was too weak to even do that now. I also have ridiculous laughter occasionally mixed in with it. The people who know and care about you will understand, everyone else is best avoided.
                Each day is made easier with a bit of humour.

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                  #9
                  Guess that rules out a Forum outing to see Bambi then - could you imagine 😂😂
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #10
                    Originally posted by Ellie View Post
                    Guess that rules out a Forum outing to see Bambi then - could you imagine 😂😂
                    😂😂😂

                    My wife was watching "Beauty and the Beast" over Christmas and that made me cry. I wasn't even watching it, just in the same room for heaven's sake.
                    Each day is made easier with a bit of humour.

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                      #11
                      That must be why some people call it Emotional Liability 😁
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #12
                        Ha Ha -Can I get insurance cover for this emotional liability?
                        On the other hand, I was playing in a golf competition in November and one of my fellow players missed a short putt and I started laughing, which is a big no no in golf.
                        Thanks for all your comments.

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                          #13
                          Yep, laughing at inappropriate moments is definitely the case. I hope I don't get invited to any funerals. 😉
                          Each day is made easier with a bit of humour.

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                            #14
                            Originally posted by GaryM View Post
                            Yep, laughing at inappropriate moments is definitely the case. I hope I don't get invited to any funerals. 😉
                            Hello Gary , I can tell you from personal experience they are bloody awful , had to attend one two weeks after diagnosis don’t know how I kept it together and another during the first lockdown at least that one was immediate family only
                            As long as there’s golf and beer I’m happy

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                              #15
                              Originally posted by Kenny236 View Post
                              [FONT=Calibri]On the other hand, I was playing in a golf competition in November
                              Hello kenny , it’s good you are still getting out on the coarse, I really enjoy the 4/5 hours being normal, summer only for me now, hands don’t work when it’s cold, must admit I’m really looking forward to spring so I can get out again , may have lost yardage and have to rest a bit more, but still enjoy it
                              s
                              As long as there’s golf and beer I’m happy

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