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    I have had a full head and shoulders mask fitted and have been scanned. I now have three more visits. I can't wait. ๐Ÿ˜„x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

    #2
    Wow what did it feel like wearing the masks

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      #3
      Do those 3 visits include the radiotherapy or all to do with the mask?
      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

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        #4
        How long did you have to lie on your back, Matthew? It's usually quite a while. I'd find that difficult now.
        Each day is made easier with a bit of humour.

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          #5
          Whatโ€™s the mask made of Matthew

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            #6
            GaryM Difficult because of breathing or that it would be uncomfortable?
            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            โ€‹

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              #7
              Originally posted by Bowler View Post
              Whatโ€™s the mask made of Matthew
              https://www.leedsth.nhs.uk/a-z-of-se...he-mould-room/
              Each day is made easier with a bit of humour.

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                #8
                Thanks Gary. Think I might panic as soon as the warm material was placed on my face. Even more so when the moulding took place. Hats off to anyone having it done.

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                  #9
                  I was having a beauty treatment that consisted of having hot/warm wax put on my face. It came off like a mask and I felt rather panicky so not sure how I'd feel about the whole procedure. Bolted to the table ๐Ÿคค!

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                    #10
                    Where is he?

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                      #11
                      The mask was easily to breathe through and that took 15 min then the scan I was lying down for 20 or so minutes, both beds were just hard tables. My next visit is a Covoid test following that the actual radiology and the last is a consultation. The mask was very comfortable ๐Ÿ˜ƒx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                        #12
                        I forgot I had a canular and was given tracking fluid which apparently makes you want to see. I have been syringes water all evening. ๐Ÿ˜ƒx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                          #13
                          Pee not see
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                            #14
                            Glad it went well Matthew x
                            Janette x

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                              #15
                              A hero โ˜บ

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