So so tired

[Ellie]

Oh I am so glad it's done now Sheila - hope you're proud of yourself, I know I'm proud of you

Yes, it certainly is strange having these things but they really do help us and, let's face it, we need all the help we can get!!!

Keep on top of pain by taking the painkillers regularly, if you've pain you'll tense up your tummy muscles and that will make it worse - if they contain codeine, or similar, watch for constipation.

Take it easy now and give yourself plenty of time to recover.

Big hug to you.

Love Ellie.

[Sheila]

Thank you, Kayleigh, Dina and deb. I had a good night's sleep last night. All a Bit strange getting use to these new things.
Love Sheila x

[Deb]

Hi Sheila, hats off to you for being so brave !

I am sorry you are uncomfortable but hope you are enjoying some home comforts and as you say, it's done.

Hope you're feeling better soon
Love Debbie x

[Gillette]

Hi Sheila, I’m so sorry having the PEG fitted was unpleasant for you. Be careful with the site of the tube as, if it gets caught on clothing or when being washed or dried, it can hurt. I hope you’ll feel brighter very soon.

[Kayleigh]

Well done for being so brave Sheila! Hopefully you will be more relaxed, now that you are back home, and I hope you get a good night's sleep tonight.

Love,
Kayleigh x

[Sheila]

Hi Ellie, well I finally done it, I had the peg fitted yesterday. It wasn't a pleasant experience. But I got through it. I stayed in hospital one night and came home this afternoon. I think they wanted me to stay longer, but after a sleep less night, they let me go home. Still pain full but I understand this could last a couple of weeks. So pain killers for a while. I am glad I got it out of the way.
Thanks everyone for your help. ( especially Ellie )
Love Sheila x

[Hayls]

Oh, never thought of that, I’ll see how I am tomorrow, thank you

[Ellie]

Hayls, if it's a sudden change, it's always wise to have yourself checked out in case an infection is responsible.

Love Ellie.

[Hayls]

Thank you Kayleigh and Ellie for your support, it’s just been a sudden change and got me worried, I’ve found I can’t fall asleep during day but my body feels tired, I’m keeping my fingers crossed for my PEG procedure, I’m just finding it hard to adjust but just to know that I’m not the only one that has encountered this, I know you amazing people can guide me to keep going, thank you

[Ellie]

Hi Hayls,

Yes indeed there are days when we can't summons the energy to do much.... It's best to conserve our energy for good things. Do you ever take a nap in the afternoon to recharge?

To answer your question; yes, dehydration can definitely cause lethargy. Are you able to eat enough calories? Even a small decrease in calorie intake can zap your energy reserves.

You mentioned your breathing isn't affected, which is great to hear. Often with no obvious breathing difficulties or bouts of breathlessness, our lung function may still be compromised - this may not be in your case but did you have breathing tests recently? Sats can be at 97% even with weakening breathing muscles.

Hopefully you'll soon get a feeding tube which will take a huge amount of stress off you regarding eating and drinking.

Love Ellie.

[Ellie]

Sorry to hear your energy is low Terry - pain can be draining on even the fittest person, so it could be that you're just exhausted by enduring pain?

I am sorry to bring this up, and you'll know better than me, but if you slept longer than usual, perhaps your Sats suffered and you're playing catch up?

Big hairy hug to you.

Love Chimp.

[Kayleigh]

Hi Hayls

There are various reasons why we might become tired more easily, as explained in section two of the factsheet below. Also, you might be feeling tired if you are not keeping hydrated or if you are not consuming enough calories, including the necessary vitamins and minerals. If you have a dietitian then that person should be able to give you deatailed advice about your diet and how it can be adjusted, if necessary.

Mnda factsheet about managing fatigue
http://https://static.mndassociation.org/app/uploads/2017/05/19135408/11D-managing-fatigue.pdf

Love
Kayleigh

[Hayls]

Thank you for commenting on this thread, I’ve read over time that tiredness can affect us all differently but I’ve been very lucky in that I find as the day goes on the tiredness increases however I seem to now have a whole day just feeling I have no energy and the following day can be good, my oximetry tests are 97% and my breathing is unaffected so far fingers crossed is this normal to have days just feeling tired or is there likely a cause? I’m still waiting for my PEG can reduced fluids affect me this way?

[Terry]

Hi all,

I'm so so tired today. I had my best nights sleep that I can remember, nearly seven hours in one go and a couple of hours after that. I am taking a few more meds because of my bad back but nothing powerful.

I normally sleep poorly and have loads of energy.

Love Terry

[Terry]

Do try to have atleast one and a half liters or more if you are active. I know that has repercussions but probably better than the things you can get if you don't drink enough.

OT could give you a temporary solution but i hope your new shower room will be open this week.

Love Terry