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  • matthew55
    replied
    Atropine a couple of hours before bed. Like I have said before it's a choice between dry or wet. Also on Tuesday I might have good news for everyone who struggles with saliva. πŸ‘πŸ˜ƒx

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  • Deb
    replied
    Glad you had a better night Gary. It makes you feel so much better in the day when you've had a good sleep xπŸ’€πŸ™‚

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  • Ellie
    replied
    GaryM Great to hear that, Gary. Here's to another good sleep tonight (and no midnight Netflix 😁) x

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  • GaryM
    replied
    Well I had a better night's sleep last night. Maybe because I was more tired. I just read for an hour and seemed to get to sleep fairly quickly. Still woke every 1.5 or 3 hours to turn over, but went back to sleep straight away. Even managed to get up at 9.00 this morning, so feeling better today.

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  • denise
    replied
    Lunch time is usually 1-3 even shops shut. Not supermarkets though πŸ€”

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  • denise
    replied
    Gary if your jaw is a problem can't you use a strap, the kind that's used to stop snoring.
    as for staying in bed, what's wrong with staying in bed? I know you need to eat but can't you have something during the night/early morning.? Sometimes having the munchies keeps us awake. I never thought I'd do this but here lunch/dinner is usually 1-2pm most eat then have a snooze. I thought I'd never give it a go but have to say it's not a bad idea. I've always thought I'm living in the wrong time zone. I think you should suit yourself when you want/need to sleep. If you stop worrying about it you might relax and sleep. Theres good relaxation stuff on YouTube radio drama or books. What you need is something boring so you nod off. Shipping forecast is on there though I guess if there's a hurricane warning it might have the wrong effect. πŸ˜„

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  • Barry52
    replied
    Originally posted by GaryM View Post

    I've never been one who could nap Barry. I don't think I've slept anywhere other than a bed in my whole life. Never managed to sleep on a plane, train or ferry. My wife on the other hand........
    Yes like you I can’t sleep if it’s moving but my chair only goes up and down on command

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  • GaryM
    replied
    Thanks Ellie, very helpful as always. That's why I've been reluctant to start tampering with saliva.

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  • Ellie
    replied
    Originally posted by GaryM View Post
    I've not quite got my head around the difference between saliva and mucus.
    Different glands make mucus and saliva - generally, in talking about secretion management in ALS, mucus secretions cause issues in the throat and lungs, whilst saliva causes issues in the mouth.

    Originally posted by GaryM View Post
    So, if I take hyocine to reduce the saliva, would that affect mucus? If it does affect mucus how would that manifest itself?
    Unfortunately in reducing the amount of saliva produced, you may end up having thicker mucus - normally we produce, and swallow, 1-1.5 litres of saliva per day, which helps to thin mucus, so ideally we should up our water intake by that amount if affected...

    It is always trial and error to get a working dose of any saliva medication, likewise if your mucus is thickened as a side effect, the dose may need to be tweaked to achieve a balance.


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  • GaryM
    replied
    Originally posted by Barry52 View Post
    I used to feel guilty about having a nap in my recliner but not anymore. This disease saps our energy so rest following a disturbed night is important.
    I've never been one who could nap Barry. I don't think I've slept anywhere other than a bed in my whole life. Never managed to sleep on a plane, train or ferry. My wife on the other hand........

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  • GaryM
    replied
    Originally posted by rachelr View Post
    Sleep calming sprays and balms help me, as does meditation propped up by pillows.
    I've never had trouble getting to sleep Rachel, until now. I think I might have to give it a bit more thought from now on. What is a sleep calming spray? My wife is an expert on lotions and potions, but I've never heard her mention anything like that.

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  • GaryM
    replied
    Originally posted by Bowler View Post
    Hi Gary as Deb said having a bit of rant is perfectly ok. Ann used some travel sickness patches behind her ear. They really worked for her. We found a whole one dried her up too much so I used to cut them in half and sometimes even a quarter. Might be worth a go, you can always stop.
    That might be very handy, Phil. I'll bear it in mind if I use them.

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  • GaryM
    replied
    Originally posted by Ellie View Post
    πŸ€” The pineapple juice might not be doing you any favours, Gary - it thins secretions for sure, which is great for mucus, but sometimes not so great for saliva...

    The thing about the hyoscine patch is, well, it's a patch, so it releases its medicine 24/7, which might not suit everyone.

    You may just want to take something to reduce saliva production before bed?

    Sleep is so important for us, it provides much needed energy to get us through the day!

    Love Ellie.
    I've not quite got my head around the difference between saliva and mucus. So, if I take hyocine to reduce the saliva, would that affect mucus? If it does affect mucus how would that manifest itself? I only occasionally have something in my throat, which I assume is sticky mucus, which makes me cough for a few minutes to clear it.

    I'll try giving the pineapple a break for a while and see if there is any difference. I've been twitching a lot more in the last week, probably due to tiredness.

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  • Barry52
    replied
    I used to feel guilty about having a nap in my recliner but not anymore. This disease saps our energy so rest following a disturbed night is important.

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  • GaryM
    replied
    Originally posted by Deb View Post
    Hi Gary,

    Don't say sorry for having a moan.. I had one this morning too. Things always seem worse in the night when we can't sleep. My bodyclock seems to be out of sync too. I read for a couple of hours in bed until I feel drowsy and then I can't sleep. In my case I think I'm feeling uncomfortable because I can't turn over or move my legs but i think its in my head because in the morning I feel really comfortable and warm and could easily go back to sleep.

    I've asked my husband to wake me earlier but he always says he doesn't want to because I look peaceful. What he means, I think is he's getting some peace !

    I'm going to try having my shower before bed and I've ordered some calming sleep cream. I'm resisting taking medication to help me sleep.

    Heres to a better night,
    Love Debbie x
    I can certainly identity with a lot of what you say, Debbie. I have every intention of getting up at 8.30 with the idea that it'll make me more likely to sleep earlier, but as you say in the morning I feel more relaxed and comfortable and usually snooze from 8.00 until 9.30 or 10. The bit about leaving you in bed rings true, my wife likes to have an hour with a cup of coffee and online news before having to get me up.

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