When in the end of life thoughts turn to what to do before you can not. Revisited places you have loved and things you'd like to do again, it's only natural. But some things I have done can really never be done again. I was lucky enough to stand on the roof of the World Trade Center NY, I witnessed the millennium wheel and bridge being built in London and was onboard a scheduled Concord flight at Heathrow. Thanks be that I still have my memories. ๐๐x
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx -
I always wanted to ride a horse. I finally did it a few years ago and hurt my left shoulder getting off. It still aches so i wont be doing that again.
when i can think of something profound i will update this. -
A friend recently persuaded me to compile and record my own personal Desert Island Discs, with him as the interviewer.
I'm so glad he did because it provided a loosely structured way to record some of my favourite pieces of music that I associated with important milestones in my life.
I ended up with an hour of me waffling on about stuff from my life held together by some great tunes. For example, in 1972 we managed to book Supertramp and Roxy Music on the same bill for our school dance! The song I chose was Virginia Plain as it was at number one when they played at our school.
I purchased some cheap memory sticks and sent copies to those who had expressed an interest. The feedback has been overwhelming.
Regards Pop pickersComment
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Standardbeatz Great idea - well done to you both xโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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What a brilliant idea
when i can think of something profound i will update this.Comment
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My daughter has given me a project for lockdown, she has bought me a year's subscription to Storyworth (have I already told you??). It's American , she asks me, via this organisation, a question every week (my first was what was your first big trip?), which is quite an interesting stimulus to review your life and share something of it. The stories you make are recorded in a book at the end of the year. You decide if you want to share it with anyone else (have added my son). Will we really make it through 52 stories?! xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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What a fabulous idea.Comment
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Another wonderful idea.when i can think of something profound i will update this.Comment
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