As things progress I just wondered if anyone else has what I got. I feel a burp traveling up but it doesn't come out, it just sits in my throat until I swallow. It is the strangest feeling. πx
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Just got to love MND
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GaryM You paint such an attractive picture of yourself - get the Mrs to photo you, complete projectile drool and oozy stoma, then you can be the MND Poster Boy ππ No offence intended!
Actually, I'll join you showing my wonky feet and skeletal upper body, whilst 'standing up' up in my hoist. MND - the reality...
Love Ellie.
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I don't get that yet Matthew, but I do get a kind of spasm in my throat which is quite painful for a few seconds until it subsides, though not had the saliva spurt yet Gary! x
Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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