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The immediate impact of the Covid 19 on MND

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    The immediate impact of the Covid 19 on MND

    Heres a link with interesting link to the impact of Covid 19 on MND https://doi.org/10.1007/s00415-020-10207-9

    #2
    It’s been a difficult time for anyone needing to access hospital services, or even getting a GP appointment. I get a little annoyed when the media only mention the impact of Covid 19 on cancer patients, it’s a far wider problem.

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      #3
      My little baby girl was in Great Ormond Street and even there the cancer kiddies got all the new stuff. Ever was it so. 😁x

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        #4

        • Maidinkent58 26 January 2021, 12:42
          As the Covid pandemic continues I have huge concerns about having the vaccine, as everyone I know who HAS had it was very unwell on that day. I really don’t want to be feeling unwell at all. My worry is the MND problems could be made a whole lot worse by having the vaccine. So my question is this...............are there any MND sufferers on here who HAVE had the vaccine? I had my surgery call me yesterday to have it tomorrow..............

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          #5
          I haven’t had the vaccine yet but I would gladly take your place in the queue. If you get COVID then imagine how poorly you will be. Good luck for tomorrow.
          I’m going to do this even if it kills me!

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            #6
            Good Luck tomorrow with the vaccine.

            I had it yesterday and felt very lucky to get it . My husband was fortunate to get it too, as my carer. We both had a slight headache and temperature last night but at least we knew why. He was actually worse than me ( or maybe he just moaned more !) Just feel a little tired today after a disturbed night.

            Like Barry says imagine how much worse the virus would be.
            Love Debbie

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              #7
              Oh I wake up four or five times every night and I haven't had the jab 😁x

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                #8
                Originally posted by matthew55 View Post
                Oh I wake up four or five times every night and I haven't had the jab 😁x
                Same here. I'm more concerned about when my wife gets it as that's when I'll feel a lot more optimistic. Don't know what I'd do if she had to go into hospital.
                Each day is made easier with a bit of humour.

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                  #9
                  I know how you feel Gary. Relying so much on one person makes you feel very vulnerable. X

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                    #10
                    Originally posted by Deb View Post
                    I know how you feel Gary. Relying so much on one person makes you feel very vulnerable. X
                    It's quite difficult getting that across to other family members, Debbie. They're sympathetic, but don't seem to understand the implications of your 24/7 carer not being there. When my wife goes food shopping once a week, she makes sure I've been to the loo and I'm told to sit in the chair and not move. I even track her location on Google maps so I know where she is.
                    Each day is made easier with a bit of humour.

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                      #11
                      We had the vaccine on Tuesday (26/1/21). We had the Oxford AstraZeneca jab (made in the usual vaccine way taking part of the spike protein from Chimpanzees COVID-19. How it works is for your immune system to learn how to recognise the real virus quickly and have the ability to deal with it from having had to deal with the bit of the spike protein that was in the vaccine). We both had a stuffy head with bit of a headache. I was very sleepy yesterday (Wednesday) but I’d had a very bad night because of pain. I don’t know how much of my sleepiness was caused by the jab and how much because of needing more sleep. Steve was very cold. He never usually complains of that so it must have been a side effect of the jab. I was a bit hotter. We are both back to normal today (Thursday). Reactions to vaccines show us that our immune systems are working. If there wasn’t a reaction to this type of vaccine it could be evidence of a compromised immune system.

                      I believe that the other vaccine (Pfizer) based on RNA has no side effects reported. I was hoping for this one but obviously we didn’t have a choice.

                      I'd recommend that everyone gets vaccinated. If your very worried about side effects you could discuss this with your GP to see if they can get you the Pfizer vaccine. But the side effects that us and others we know that had the Oxford AstraZeneca vaccine were minor and short lived so wouldn’t worry me. What worries me is the efficacy of delaying second doses. We are only partly covered until our second dose.
                      Lynne
                      Last edited by Lynne K; 28 January 2021, 17:02.
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                      I'm staying positive and taking each day as it comes.

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                        #12
                        Originally posted by Lynne K View Post

                        ..........What worries me is the efficacy of delaying second doses. We are only partly covered until our second dose.
                        Lynne
                        I think I've read that the vaccines are 70% effective after one dose. In comparison, the annual flu jab is about 50% effective. Don't know if that helps.
                        Each day is made easier with a bit of humour.

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                          #13
                          Yea, I know Gary. But if the scientists are right it means that anybody who has been vaccinated with the first dose and goes on to get Covid-19 then they ought only get a mild dose of it (after the initial three weeks after having the jab when the immune system is still learning). But one scientist on the PMs daily Covid announcement said that some would still die but didn’t elaborate on what cohort would. Thanks for replying promptly anyway. Lynne
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                          I'm staying positive and taking each day as it comes.

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                            #14
                            I had the Oxford vaccine on the 25th and being honest It did make me very tired for the last three days and I felt a bit unwell today but I took paracetamol today three times and that definitely lifted the feelings, the nurse who injected it did warn of tiredness effect and said even when she had it she felt very tired for three days. So tiredness seems quite common and I’m sure it will pass.

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                              #15
                              Thanks everyone for your replies, most helpful

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