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    I'm back home after my final session of radiology and I have to urge you to do the same if you are struggling with saliva and dribbling. The difference is astonishing and just like that I no longer need drugs to dry up. Please feel free to contact me directly if you want more detail. πŸ˜πŸ‘x IMG_20210128_170142.jpg This is the mask they make and use to fix the head in the same place each time. It is completely porous and even a mouth breather like me had no problems breathing with it on. πŸ˜„β€‹β€‹β€‹β€‹β€‹β€‹
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Well done

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      #3
      πŸ‘ Sounds like you'll be on a high for the next few days.
      Each day is made easier with a bit of humour.

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        #4
        Love the new profile pic, by the way.
        Each day is made easier with a bit of humour.

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          #5
          Well done.

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            #6
            Great news Matthew and your new avatar is an improvement on the old one lol.
            I’m going to do this even if it kills me!

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              #7
              Well done you, although you look a bit scary to me in that mask 😏 I hope it really improves things for you. πŸ‘πŸ» x

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                #8
                Hi Mathew, Well done, you’re very brave having it done. I’m really interested in how this pans out for you, please keep us updated I desperately want to have either radiotherapy or botox but my nurse specialise is worrying me by going on about how permanent radiotherapy is and about bad side affects and similar comments about botox so I’m quite nervous which or any way to go? saliva is now affecting my living more than ever. She says that the mucus that keeps getting stuck in my throat and causing choking will likely get worse if I had the botox.
                Regards David

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                  #9
                  Well so far the only side effect is sore to touch patches under my ears that don't hurt otherwise. I have just pegged pineapple juice which I know reduces my flem. It will take a few days to settle down but early signs are good. I'm not dribbling and I'm using a lot less tissues. I still have saliva being produced just not as much. 😁x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Great news Matthew πŸ‘
                    Janette x

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                      #11
                      matthew55 That’s really good news, I’m very pleased it all went well for you

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                        #12
                        Hi matthew
                        well that sounds great I'm so pleased it's a positive result. Think if I was David I'd get a 2nd opinion especially as we have all heard from Matthew and it looks good. After all if we don't try we will never find out. I have no idea what kind of effects radiotherapy or BOTOX could have, guess Gary might know about radiotherapy, but suffering without giving it a go?
                        and you might get to keep the mask πŸ˜‰

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                          #13
                          Give it until next Friday for a tentative result. I did bring my mask home but after photographing it I have no idea what to do with it! 😁x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Well that gave me a good laugh. You could frighten the life out of a good few people with that on. You should put it somewhere so if anyone breaks in they'll get the fright of their lives.

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                              #15
                              A great Halloween mask πŸ’€πŸŽƒ
                              Janette x

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