Competition time! Weirdest place you have had facilitations? My go: My nose. ππx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Is that since having the treatment?
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It has nothing to do with the treatmentBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Yours must be the strangest because no one else has answered πComment
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I didn't post it to get a response. It's just yet another attempt to get people who don't have MND to understand what it is. πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Good afternoon Matthew
I'm not sure I can beat strange but it does seem appropriate place to ask a question I was about to ask which is are your eyelid muscles affected by MND?
I ask because I can feel my right eyelid doing funny things then it has been doing for years that hence my questionWarmly
Andy
βDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulderβ Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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Well you're in luck as my number two was eye lids πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Really? I thought this was just my imagination or just tired eyesWarmly
Andy
βDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulderβ Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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Assuming that you mean twitching, I seem to get them everywhere. The only place I've not noticed them is, to use a phrase from 'Upstart Crow', in my cod-dangle. But there are no muscles there. πEach day is made easier with a bit of humour.Comment
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Twitching is spot on. The eye lids feel particularly strange πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Mine was my top lip, one side only, thought I was trying to do an Elvis impersonationComment
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My bum π¬Janette xComment
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Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?As long as thereβs golf and beer Iβm happyComment
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No clue but it happens so probably, think sleeping πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Well mine are, otherwise they might close when I'm walking around. πOriginally posted by Shaun View PostEach day is made easier with a bit of humour.Comment
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