Competition time! Weirdest place you have had facilitations? My go: My nose. ππx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Is that since having the treatment?
when i can think of something profound i will update this. -
It has nothing to do with the treatmentBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Yours must be the strangest because no one else has answered πwhen i can think of something profound i will update this.Comment
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I didn't post it to get a response. It's just yet another attempt to get people who don't have MND to understand what it is. πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Good afternoon Matthew
I'm not sure I can beat strange but it does seem appropriate place to ask a question I was about to ask which is are your eyelid muscles affected by MND?
I ask because I can feel my right eyelid doing funny things then it has been doing for years that hence my questionWarmly
Andy
βDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues β Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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Well you're in luck as my number two was eye lids πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Really? I thought this was just my imagination or just tired eyesWarmly
Andy
βDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues β Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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Assuming that you mean twitching, I seem to get them everywhere. The only place I've not noticed them is, to use a phrase from 'Upstart Crow', in my cod-dangle. But there are no muscles there. πEach day is made easier with a bit of humour.Comment
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Twitching is spot on. The eye lids feel particularly strange πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Mine was my top lip, one side only, thought I was trying to do an Elvis impersonationComment
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My bum π¬Janette xComment
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Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?As long as thereβs golf and beer Iβm happyComment
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No clue but it happens so probably, think sleeping πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Well mine are, otherwise they might close when I'm walking around. πOriginally posted by Shaun View PostEach day is made easier with a bit of humour.Comment
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