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    Facilitations

    Competition time! Weirdest place you have had facilitations? My go: My nose. πŸ˜‰πŸ˜‚x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Is that since having the treatment?
    when i can think of something profound i will update this.

    Comment


      #3
      It has nothing to do with the treatment
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Yours must be the strangest because no one else has answered 😁
        when i can think of something profound i will update this.

        Comment


          #5
          I didn't post it to get a response. It's just yet another attempt to get people who don't have MND to understand what it is. 😁x
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

          Comment


            #6
            Good afternoon Matthew

            I'm not sure I can beat strange but it does seem appropriate place to ask a question I was about to ask which is are your eyelid muscles affected by MND?

            I ask because I can feel my right eyelid doing funny things then it has been doing for years that hence my question
            Warmly


            Andy

            ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

            "Things turn out the best for people who make the best of the way things turn out"

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              #7
              Well you're in luck as my number two was eye lids 😁x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                Really? I thought this was just my imagination or just tired eyes
                Warmly


                Andy

                ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

                "Things turn out the best for people who make the best of the way things turn out"

                Comment


                  #9
                  Assuming that you mean twitching, I seem to get them everywhere. The only place I've not noticed them is, to use a phrase from 'Upstart Crow', in my cod-dangle. But there are no muscles there. 😁
                  Each day is made easier with a bit of humour.

                  Comment


                    #10
                    Twitching is spot on. The eye lids feel particularly strange 😁x
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                    Comment


                      #11
                      Mine was my top lip, one side only, thought I was trying to do an Elvis impersonation

                      Comment


                        #12
                        My bum 😬
                        Janette x

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                          #13
                          Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?
                          As long as there’s golf and beer I’m happy

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                            #14
                            No clue but it happens so probably, think sleeping 😁x
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                            Comment


                              #15
                              Originally posted by Shaun View Post
                              Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?
                              Well mine are, otherwise they might close when I'm walking around. πŸ˜‰
                              Each day is made easier with a bit of humour.

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