One place I do get them which always feels a bit odd is my stoma site.
Facilitations
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Hi All, yes I get fasciculations[twitching] daily all over my body.I find I am more aware of them when in bed or sitting quietly.It is disturbing when I get them around my mouth.My Neurologist did say my tongue is affected which again is a horrible fact.Sometimes I can see my hands and legs twitching ..not a nice feeling but painless.Best wishes.Mary
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Hi Matthew, I’m the same as you, nose twitches a lot and mainly my left eye surrounds go mad, think you said before your MND is Bulbar onset? which is the same as me. I’ve lost speech complete and swallow like you. get a few odd arm and leg twitches but luckily I’m still quite physically able to move them although they are a bit weaker. How are you getting on with the saliva? I’m still waiting for some help with having either Botox or radio therapy like you had.
Regards David
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